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  1. Esther12
    Post

    Register now for ME/CFS Advocacy Day on Capitol Hill!

    Interesting idea. I hope it goes well.
    Post by: Esther12, Mar 12, 2018 in forum: Advocacy Projects and Campaigns
  2. Esther12
    Post

    Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline, 2006

    I'm definitely not saying we should keep quiet! I think it's worth trying to think about any prejudices we may face, in order to consider what...
    Post by: Esther12, Mar 12, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  3. Esther12
    Post

    Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline, 2006

    I don't know. Naturally I'm wary of how things might come across to people immersed in the UK's prejudices about ME protesters, but it might be...
    Post by: Esther12, Mar 11, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Esther12
    Post

    Correspondence from the DWP for 2004

    I'd be interested in that. I've still not had a chance to go through these, but I would like to at some point. Thanks for all your notes.
    Post by: Esther12, Mar 11, 2018 in forum: General ME/CFS news
  5. Esther12
    Post

    Trial By Error: A Letter to Archives of Disease in Childhood

    I just happened to get linked to Phil Parker's facebook page, and found this really sciencey explanation of CFS. I especially like how point 3...
    Post by: Esther12, Mar 10, 2018 in forum: General ME/CFS news
  6. Esther12
    Post

    A general thread on the PACE trial!

    Some PACE parliamentary questions and non-answers from May 2012 - I'm especially interested in the ISRCTN ones:...
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Esther12
    Post

    A general thread on the PACE trial!

    @Bob was quite rightly pissed off by this claim in the MRC press release for the PACE cost effectiveness paper....
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Esther12
    Post

    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    Sounds like there is a lot of interesting stuff in these files. Thanks for going through them @ukxmrv .
    Post by: Esther12, Mar 10, 2018 in forum: Other guidelines
  9. Esther12
    Post

    Occupational Aspects of the Management of Chronic Fatigue Syndrome: a National Guideline, 2006

    The document Suffolkres just posted included this section on Madan: Thanks for digging into this @Suffolkres. Even if you can't get changes,...
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Esther12
    Post

    A general thread on the PACE trial!

    From an old Dolphin post:
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Esther12
    Post

    A general thread on the PACE trial!

    Not very important, but I don't remember seeing White giving this reason for choosing Oxford in PACE:...
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Esther12
    Post

    A general thread on the PACE trial!

    I've been reading some old PACE comments today, and finding old points/arguments that have since been forgotten, I thought I'd repost this one...
    Post by: Esther12, Mar 10, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Esther12
    Post

    Members of Congress are coming together in a single voice to stand for ME/CFS. Will your Representative join them?

    Thanks.
    Post by: Esther12, Mar 9, 2018 in forum: Advocacy Action Alerts
  14. Esther12
    Post

    Mark Edwards: What relationship do stressful life events, neglect & abuse have with functional neurological disorder (conversion disorder)?

    When the blog said "studies with arguably more rigorous methods of life events ascertainment, a higher rate of adverse life events prior to onset...
    Post by: Esther12, Mar 9, 2018 in forum: Other psychosomatic news and research
  15. Esther12
    Post

    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    So you're grouping things from different files, based on topic? I get you. Thanks for letter me know.
    Post by: Esther12, Mar 9, 2018 in forum: Other guidelines
  16. Esther12
    Post

    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    Thanks for all these notes. Interesting stuff. Do they all these come from the file you mentioned in your first post?: GDG06 Minutes 251105
    Post by: Esther12, Mar 9, 2018 in forum: Other guidelines
  17. Esther12
    Post

    Trial By Error: A Letter to BMJ Open

    Looks like the latest COPE meeting led to no further information, and this new conclusion:...
    Post by: Esther12, Mar 9, 2018 in forum: General ME/CFS news
  18. Esther12
    Post

    Cochrane review and the PACE trial

    bump.
    Post by: Esther12, Mar 9, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Esther12
    Post

    Gary Burgess - 'My illness has shown journalism can be a force for good'

    Also... fingers crossed that Gary will genuinely recover. For people who've been ill less long, they do seem more likely to go on to just...
    Post by: Esther12, Mar 8, 2018 in forum: General ME/CFS news
  20. Esther12
    Post

    Correspondence from the DWP for 2004

    Aylward seemed close to AfME in 2003 too: https://www.s4me.info/threads/correspondence-from-the-dwp-for-2003.2682/#post-49749 I've been planning...
    Post by: Esther12, Mar 8, 2018 in forum: General ME/CFS news
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