I had an email from David thanking me for my donation a day or two ago. He said he's going through and writing to everyone to thank them, so it's...
Thank you, @dave30th.
It is not clear to me whether this survey is intended as a research project to find out whether UK clinics have been implementing the NICE...
We have had many discussions of BACME on the forum. See this thread if you want to read or say more about it: United Kingdom: News from BACME -...
The announcement linked on the opening page of this thread says it was funded by the MEA. There's no mention of the Ramsay fund. ME Association...
I think the MEA normally have a good record on funding biomedical research, so I wouldn't dismiss them altogether. I wonder whether this project,...
On the MEA page about the Ramsay Research Fund I linked above: They also say they only fund biomedical research from that fund.
MEA Ramsay Research Fund https://meassociation.org.uk/research/ Solve ME Ramsay Research Grant Program...
I assume this is part of the crossover between traditional Chinese medicine and western medicine.
I think there's a major problem with this article, namely that the authors accept without question the claim that the rehabilitation approach...
Starting to read the whole article, they go into the model each approach is based on, basically biomedical and BPS.
I wish they would write in straightforward English. I think what they are saying in the abstract is 1. Clinics run by therapists work on a...
As I understand it, the MEA fundraises for it's general running costs and for research. The part of it's funds dedicated to research is called the...
I find it odd that the questionnaire is only to be answered, and therefore commented on helpfully, by people who have attended specialist clinics...
I forgot to comment on these questions. They should not be there. As we know, there is currently no explanation of what causes ME/CFS. We know for...
That assumes the pwME has sufficient knowledge to assess whether the information they were given was accurate and up to date. Given the problems...
I assume these are intended to find out whether the clinics are following the NICE guidelines. Which is OK, but I think it should also include...
Still using the 'baseline' terminology' unhelpfully. And an assumption that at baseline one has no or few symptoms. Not my experience, and I...
Symptom contingent pacing is not pacing up. Symptom contingent pacing, as I understand it, is pacing guided by symptoms, both immediate increases...
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