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17. What interventions did you receive? (tick all that apply) Yes No Tests (or referrals to another service) for other conditions Tests to make...
I guess most of us won't be eligible to do this one, as we haven't 'received treatment' for our ME/CFS in the NHS in the last 3 years. Given...
Thanks, here's the introductory page: Developing a Clinical Assessment Toolkit for People with ME/CFS and Clinical Services. Stage 4: Patient...
Can anyone link to the survey, please.
Radio 4 Today program this morning from 40 to 46 minutes, a moving interview with Sean O'Niell https://www.bbc.co.uk/sounds/play/m002197x
Times Radio: Tne Times newspaper: https://www.thetimes.com/uk/healthcare/article/sajid-javid-labour-me-patients-suffer-without-cure-8zkj6prl6
The inquest into Maeve's death starts on Monday 22nd July. Copies of the tweets. Sean O'Neill@TimesONeill I spoke with @StigAbell yesterday...
Thanks to you and all concerned. Will you be publishing the letter and response here or elsewhere?
It seems a pretty daft task for pwME anyway. It hasn't been validated for ME/CFS and is inappropriate. I hope it's never used again. It was...
That's quite a task collecting and analysing all that personal data. I hope he finds it helpful. I have had a few desultory efforts at something...
Some posts have been copied or moved from this and other threads to a new thread to keep the topic in one place. Caroline Struthers'...
Some posts have been moved to: Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome,...
I don't get how they can conclude there is no cognitive impairment when they found lower processing speed. It's not clear from the abstract what...
I wouldn't start with YouTube as a source. There are thousands of people with poor understanding spouting all sorts of stuff, as we've found here,...
Given that even some ME researchers and doctors and patient groups try to insist that there is a lot known about ME/CFS biology, ranging from...
Be careful what you wish for. You may end up with an item led by BPS proponents.
I think this whole thread has provided some very valuable contributions to the specific and wider issues about ME/CFS. @Lucibee, thank you for...
Rather than subjecting them to 2-day CPET and risking long term worsening, it might be possible instead to use activity and HR trackers and...
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