I agree that if a clincian is setting out to test a treatment, or to show it is effective, that is indeed a trial, and needs more than one patient...
Interesting that Jonathan Edwards and my answers are so different. I was answering from the perspective of seeing so many people claiming they...
I think ideally I'd want the person trying the treatment to be diagnosed by a reputable doctor, had ME/CFS of sufficient severity and duration to...
Understood. I look forward to future articles. I get the part about keeping it tightly focused - better for clearly conveying the central message.
The wording may be different, but is there any evidence they achieve more in terms of influence on government or the NHS? As my mother used to...
It's a really good article, thanks, @dave30th. As a pwME I'm kind of sad you didn't include ME/CFS in any way, but I guess you wanted to keep it...
Thank you for sharing your experience, @LJord. We have another thread about this device: Monitoring Carotid Blood Flow Using In-Ear Wearable...
I agree. I did find in tiny text the option of a low stimulus version, but that still has lots of irrelevant pictures.
I've had a quick look at a few pages on this website. It seems to be run by a doctor and some people with Long Covid. For example: The...
Ugh, brings back memories of having to go into the genetics department on the weekend to look after my drosophila and try to tell the difference...
I think with Long Covid there has been some impact on employers and governments of the numbers becoming too sick to work, so bodies like the NIH...
I agree. Fatigue is the least of our worries. Pain, sensory sensitivities especially the less recognised ones of touch and pressure sensitivity,...
Hi @SteveFifield, welcome. I haven't tried Visible with the armband, but am interested to know more about how they do their calculations and on...
Replicating this experiment with pwME would be impossible now, as anyone asked to take it can google it, find this and similar discussions, and...
I think I recognised that one from some sort of anxiety or depression questionnaire. Totally inappropriate for asking people with disabling...
Discussion thread on ACT here: https://www.s4me.info/threads/acceptance-and-commitment-therapy-for-me-cfs-discussion-thread.23207/
It did not seem clear to me whether they were saying some pwME who need nutritional support because of swallowing difficulties and stomach pain...
I'm not sure I understand whether the statement by parents and carers is intended to criticise some aspect of Jonathan Edwards article, or to...
I wonder whether it was clinically significant improvement. And no follow up, so responses taken while pwFM were still in influenced by whatever...
Can you provide a link?
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