Yes, the 'tired but wired' sleepless night(s) I experience as an early stage of a crash.
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We have two threads on the C19 Yorkshire Rehabilitation Scale: The modified COVID-19 Yorkshire Rehabilitation Scale (C19-YRSm) patient-reported...
https://www.elaros.com/ ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where...
Would it be possible to ask for the statistical analysis plan in detail, including which tests were used on which data points and why? And to ask...
There is the additional problem of people being too sick to tolerate the help they need with things like bathing, so ending up living unwashed. I...
I think this is difficult. ME/CFS has such a fluctuating pattern for many people that you can't even contemplate going back to employment until...
I have done the survey. I think it's fine. It is pretty basic about what kinds of CAM you have used, whether you plan to use them, whether you got...
I think that's the bit about it I find most alarmingly unscientific. They did one inappropriate test not validated for pwME on a tiny set of pwME...
Another study with antibodies and mice: Preprint Transfer of IgG from Long COVID patients induces symptomology in mice, 2024, Vidarsson+ Comments...
Some posts have been moved to more relevant threads: USA: NIH National Institutes of Health USA: The RECOVER Initiative - Long Covid research Long...
Can you copy the relevant bit, or photograph the pamphlet and upload it to the forum? It may be an attempt to write in 'plain English' a...
You can tell something is a scam by the name they give their product. We're building up a collection, with Lightning Process, Crysallis effect,...
Risks for Developing ME/CFS in College Students Following Infectious Mononucleosis: A Prospective Cohort Study, 2020, Jason et al Article | Thread...
We have already had a lengthy conversation with Leisk a few years ago. There was no foundation to his protocol other than his imagination and his...
@sarahtyson can you give us an update? If you don't want to do it here, perhaps ask the MEA to do an update on their website.
I've lost track of what's happening in this project. As far as I remember, there have been 3 questionnaires so far, one on symptoms, one that was...
What on earth does he mean? I assume he's referring to the arbitrary point at which many doctors and guidelines switch from calling the problem...
I think a useful partial parallel might be diabetes where it is necessary to 'pace' intake of carbs and insulin. However well the diet and insulin...
I have no idea, but his focus is going to be on sorting out the doctors' strikes and getting waiting lists down. I hope the ME and Long Covid...
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