I fear it will be a jumble of individual doctors' idiosyncratic views, rather than a useful contribution to knowledge about ME/CFS.
I have just listened. That was a really powerful program. The callers spoke so eloquently about gaslighting by clinicians and in many cases family...
I don't think the problem is the profession. The problem is not understanding ME/CFS and PEM. Look at Physios for ME. They get it.
Peter Gladwell is a physiotherapist. His PhD was on using TENS for pain. I think his clinical experience is pain and fatigue, with ME/CFS included.
The PACE trial manuals describe the different arms of the trial as: Simple Non-incremental Adaptive Pacing Therapy (APT) Complex Incremental...
Exactly. Very clearly stated.
I don't seem to be able to post my reply on Bluesky directly. https://bsky.app/profile/ozfish.bsky.social/post/3l2hhrztgl22t Here's a copy: I...
Why is she listening now when she and her chum Wessely haven't listened for 30 years? Could it be because some of their clinician friends and...
As I understand it The Chronic Collaboration was basically Steve Topple and his partner. From MEpedia:...
Peter Gladwell is also on the IAG (independent advisory group) led by Hilda Bastian for the Cochrane Exercise therapy for ME/CFS new review. His...
I think the boom and bust idea is wrong, as illustrated by the studies @ME/CFS Skeptic describes in this article which show that there is not an...
Hello @hellytheelephant, it's lovely to hear from you again, and read your musings on your life. :hug:
A really excellent study, @ME/CFS Skeptic, thank you.
Letter sent here: Open letter to Action for ME with concerns about their promotion of a problematic Care and Support Plan Template
Did the replication attempts do the same experiments to look at the same feature of NK cells?
(continued from previous post) 5. The sections on activities and limitations is both too long and inadequate The lists provided as examples of...
I have just sent the following letter to AfME, signed by 15 forum members, including the 5 available committee members To discuss the document...
Done
Added.
Thanks, names added.
Separate names with a comma.
