Thank you.
Ha ha. [SPOILER]
If anyone wants to add their signature to my letter to AfME about this document, please do so by 2pm tomorrow. You can read it on this members...
In Hilda's November 2023 update on the Cochrane website, she said this: So they have a history of taking a year to consider a complaint, and...
We have asked them multiple questions multiple times on things that should be straightforward to answer, and for which there can be no possible...
The latest idiocy from Sir Simon. LBC news Mental health isn’t the problem—the system is: Natasha Devon on Sir Simon Wesley’s controversial...
The latest, and briefest, communication from Cochrane: "Following up on your complaint about the 2019 Cochrane review, "Exercise therapy for...
I've posted a draft letter to AfME and will welcome feedback in the next few days:...
I'm in the process of drafting a letter. I have just looked at the survey AfME have provided for feedback. https://forms.gle/jVrwfmEWWd3yjA6g6...
Here's an example of Gladwell's research on ME/CFS where he used patients from his own clinic, and showed little understanding of the effects of...
I think a key problem with the way Gladwell carries out research and invites patient participation in it is that he uses his own patients from his...
I intend to draft a letter in the next couple of days including key points raised on this thread. If I manage to put something together, I'll post...
I think that's a really important point. Who is going to read this? Nobody. Pretending such an unwieldy document written by a pwME will be useful...
That's a good point, in my sample plan I included providing a wearable monitor and checking progress in 3 months, that could be Visible or...
Don't need to. It's straight from the NICE guidelines section on care plans, as I linked in the post above my sample plan, with the advantage that...
My interpretation of that is a one page document that lists the current situation and needs and actions to be taken by clinician and patient, for...
This is what the NICE guidelines say about Care and Support Plans 1.5 Assessment and care and support planning by an ME/CFS specialist team Also...
I think it's better to ask, what evidence is there to support this protocol? We have not seen any clinical trial research to support it, nor, as...
And Gladwell seems to be the dominant force. He's also on the Cochrane Independent Advisory Group for the new exercise review, and writes...
The Anomalies paper published in 2023 by White et al, and clearly led by White who was the leader on GET in PACE, tries to argue against NICE's...
Separate names with a comma.
