Given that symptoms are what a person experiences and reports, they can say the symptoms are real, but at the same time say the experience is an...
I had a quick look at the survey Action for ME have set up for feedback. It's far too brief and has leading questions. I feel a letter coming on....
Thank you @Yann04. That sounds like a valuable resource.
I think the BPS idea is that we aren't really as disabled as we think we are, that we are misinterpreting signals from our bodies. I don't think...
Gladwell is a senior member of BACME, he has also for a long time advised AfME on their documents about ME, including their very lengthy pacing...
I think that's the problem. It never was a logical explanation of ME/CFS. I think the idea was supposed to be that we aren't actually sick, our ME...
Also posted on the News from the UK thread.
I think if the theory on which PACE is based were purely a deconditioning theory it would be easy to counter with excellent articles like this one...
Posting this here for now, since I can't think where else to post it. Cochrane sometimes published comments about reviews which are submitted...
So first step is pacing. Good. Second step is hand you over to a bunch of therapists. Can be good if it is supportive and the pwLC needs support,...
I have now read the article. It is very clearly set out and written, and I think is very worthwhile. I wonder whether a journal would publish it.
A worthwhile topic to study, thanks, @ME/CFS Skeptic. I haven't read your article yet. Just a couple of points on your twitter thread. They...
Some posts have been moved to a new thread: Trial design for drug trials for ME/CFS - discussion thread
Posts discussing this have been moved to this thread. Please go there to continue the discussion.
So no significant difference in time in hospital, and no long term cost savings. What a waste of money. I suspect rather than psychiatric...
I doubt they actually have access to that amount of money. All we've seen so for of the ThereForME campaign is 2 carers trying to raise awareness....
I thought it was pretty good, though I get fed up with presenters who interrupt people in the middle of saying something significant with another...
Daily mail article is based on the Good Morning Britain TV interview with Sarah Boothby and Charles Shepherd.
I don't suppose most people at NIH have any thoughts at all about ME/CFS, and are happy to leave it to Nath and WalItt. If it's those 2 running...
That's fantastic to see they have given so much space in the print edition. These are the 3 online articles we've seen this week, which may be...
Separate names with a comma.
