Thanks for the link. I think if you want to read a summary of the first week at the inquest, this is probably the best article. It places Maeve's...
Can someone post a link to an archived version.
Do you mean the ones in the media articles or the ones on this thread? I think we need to be careful either way, as people are inevitably...
Blimey this is bad.
Sadly that's sort of what the 2007 NICE guideline recommended at the time, but they should have used their observation and learned rapidly that it...
Even that is insufficient for detecting PEM in my opinion, as it doesn't mention delayed effect, and doesn't distinguish between...
Hi Nightsong, thank you very much for all your reporting. Please put your health first. There are others listening who can provide feedback and...
Basing the study of a disease on 13 people who recovered, and not including people who have not recovered is bound to give a false perspective on...
"...a gastroenterologist and intestinal failure expert" I assume it means intestinal failure.
Split from previous post which I added to. The old 2007 guideline, which would have been current at the time of Maeve's hospital stays, mentions...
I've just checked. In the section on Severe ME:...
Or perhaps Walitt is demonstrating his 'fear avoidance' and 'effort preference' - avoiding confrontation, but still really believing he's right.
So why did they place it as the central hypothesis in the published paper. If he really think that, he should withdraw the paper.
I hope clinicians from the hospital who don't believe ME/CFS is real, or think it's psychosomatic will be made to explain the evidence on which...
This thread is the first I've heard of it, I think.
It's a campaign aimed at the government set up by two carers for partners with very severe ME/CFS following Covid infection. They have support...
Other threads on the same stuff from Hyland: Symptom frequency & development of a generic functional disorder symptom scale suitable for use in...
The 65 symptoms according to this paper from 2018: Symptom frequency and development of a generic functional disorder symptom scale suitable for...
I think it would be worth adding to that list people in their 20's who have had time to reflect on the impact of being sick for long periods...
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