what is the standard doseage for lupus?
As iv only responded to high dose steroids, i cant imagine that low dose stuff would be in anyway useful at all. The fact that its takes around...
I am responding very very well to high dose steroids (60-100mg predi a day), my brain is maybe 80% of pre-covid on this stuff, and have now found...
except i have taken a mab, not ritux in fairness, and it was EXACTLY like PEM fever/fatigue? so again i say, the dirth of data is the issue, and...
I think thats very hard to extract, and in all honesty when i see you say things such as "cyclo may have worked because it stopped cancer fatigue"...
i believe in the long term data melle published which was years iirc, the remissions patients were still doing very well and on the whole even...
for clarity not the condition, side effects of the mab that feel crap and similar to a flu.....and therefore similar to ME just reports from...
Even non ME/CFs patients are VERY likely to get transiently worse as these Mabs kick in, hopefully her doctor is helping her through a likely...
https://ard.bmj.com/content/74/7/1474?ijkey=d54d4e31825cd90fecd9bd0233a7f7ec297ac95d&keytype2=tf_ipsecsha this is all i can find at the moment
do you have any good sources on bort and plasma cells in autoimmunity you could share specifically perchance? im not finding much online in terms...
Ah ok thats very very interesting and somewhat surprising, and i guess why classic protocols have focused so much on b cell biologics. Thanks
I have seen trials and papers for separate arms definitely, like rapamycin in MS in the ways you describe which I belive (although i am not sure...
Oh and just to add it definitely reduces my PEM, but its 100% still there. I can do weight lifting now, at my onset and prior to rapamycin I could...
I am on rapamycin and its helped a lot, thank god I have a doctor who is willing to work with me basically. I am happy to see the trial...
Two questions regarding this 1) Why arent researchers and doctors exploring something like bortezomib which is cheap, and reduces both SLPC and...
sorry just to update the person in remission isnt answering my messages, im guessing they are out living thier life but i cant give any full...
oh yes dont worry this will be respected
Yeah you are right, let me try and get back in contact with her and get as much info as possible. Obviously as is always the case single case...
To be clear CAR-T is not "just like rituximab", although it could be fair to say its approach would be similar. Rituximab is a crap drug in...
I know a patient who has significantly disabled with Long COVID, and for a while was focused on MAID. Awful situation. She is lucky and has...
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