Thank you so much to everyone keeping us all up-to-date with the inquest, hugely appreciate it!!
Moved posts Is there reliable evidence of reduced blood volume in people with ME/CFS? Is there an S4ME thread on it? Here’s where I read about...
I think it should be made clear to doctors unfamiliar with ME that pwME often have a blood volume 20% lower than a healthy person – the blood...
***TRIGGER WARNING*** I’ve just happened on this Reddit. Thread about Carla – think it’s relevant here in the context of the Reddit thread about...
Hi everyone! I emailed Betsy Ladyzhets from The Sick Times about Maeve’s inquest and they’re on the case already, which is good. She asked me if...
Thank you and I’m glad they covered Maeve’s inquest. (I tried to search for an article on the BBC national news site earlier but it didn’t show me...
No coverage by the BBC at all, which is very disappointing. I submitted a complaint - link below in case anyone else wants to also:...
I just wanted to let you know that right now Maeve’s story is the most viewed story on the Guardian. I hope that means both Maeve’s horrific...
Hi Valerie, sorry for taking a while to reply – had a crash unfortunately but hopefully working my way back to baseline now. That’s really sad...
Hi Valerie, Thanks very much for your reply and for the immense amount of work you’ve done for our community! It makes me feel hopeful to see...
Thank you for all you and others are doing, I really appreciate it. I hope I may be in a position to help more at some stage.
Does anyone know if this in motion at all? https://valerieeliotsmith.com/2022/03/16/a-manifesto-for-change-from-strategy-to-inquiry/ I saw this...
Couple more resources for the journalist in case they’re helpful: https://www.s4me.info/threads/who-is-simon-wessely.9364/page-37...
Oh also… Info about the ME papers that were originally sealed for 75yrs (usually it’s 30 and 75 is apparently highly unusual):...
Very best of luck speaking with the journalist, I’m bedbound 95% and I appreciate what you’re doing so much. Here’s a video from a whole back...
Hi everyone! I haven’t posted here before but have learnt a lot from reading in the past few years - so thank you! (And please say if I’ve posted...
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