From the Prudence Trust website:
Looking at bobbler's very lovely chart Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al the ME/CFS participants...
I'd argue that if you tried a hard task early on and it was hard to complete, you would work getting a number of easy task rewards in the bag....
But, they weren't choosing hard tasks less often. If you look at your excellent chart - Number of hard tasks, Second-half Use of EEfRT in the NIH...
Pre-test calibration I mentioned that back a bit - the review paper I was talking about noted that there were a number of studies that did this...
One of the comments: Doctors so often don't seem to get that being 'reassured' that everything's fine when you can't do a quarter of what you...
great news, congratulations @DMissa. Nice to see the Mason Foundation selecting what promise to be good studies. Is there any detail in the...
That's very powerful testimony - and of course this is coming from someone who was a child when under Crawley's care
From the CFS personal story on his website - it's an interesting read. He suggests there that recovery doesn't happen very often. Cortisol -...
An important paper out from Switzerland - it's just a fairly simple survey of people with ME/CFS about their mental health, but very useful...
Yes, this is really valuable for advocacy. If the BPS people can't fix ME/CFS with therapies based on a psychosomatic paradigm, and there's no...
But there is criticism within the literature of some of the conclusions. That paper @bobbler linked is helpful. e.g. They question the...
It's a sympathetic article, but there is the grasping onto unevidenced 'knowledge' and treatments that is typical of people in the early stages of...
A very fair point. Almost every site gets some stuff about ME/CFS wrong, and many get a lot wrong. Cort routinely gets stuff wrong - I think his...
Yes, a few people (probably people like Crawley) make loads of money selling an app to health authorities. People with ME/CFS get given the app...
For the ones that did fill in the questionnaires at 12 months: sounds like a process of adjustment to a chronic illness, with both less time...
From the discussion re 'intensity': Sounds as if they are suggesting that the problem was the frequency, with sessions too spread out.
Yes, possibly the 'intensity' doesn't refer to the number or frequency of the sessions, but instead the 'toughness' of the sessions. Maybe they...
Given the ridiculous conclusion, suggesting that the problem was just that the young people didn't get enough time with the therapists, I have to...
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