I am thinking of sending him a personal letter along the lines of .... there are only a couple (?) of researchers and scientists in the UK...
Link it to their allowances?
Yes, I admit that I over-simplified! But the essential idea is that I don't think that this sort of patient support is a natural part of our...
There is a side to this debate which hasn't been mentioned – the nature of this forum. There are very many good things that should be done on...
I did a couple of hours private maths tuition a week, and that was easily enough for me to pay the lower NI rate. But, years spent bringing up...
That is certainly true of a minority. But what worries me is the large number of dedicated medical professionals, who aim to do their best and who...
Perhaps we could have an S4me stand and hand out the green JHP books, with me, Tom, Keith, Carolyn, Jonathan, and David all offering to sign them...
I think children can suffer the most from assumptions that the condition is primarily psychological, especially if it is tied up in child...
The number of ME centres in the UK is limited, and the idea of "name and shame" is potentially very troubling. But how about listing the good...
Could we set up a similar diagram showing how doctors fall into the trap of thinking that this sort of approach works, and it becomes the easiest...
@Jenny TipsforME : I'm not sure how to answer that. I prefer to shop in quiet, uncluttered supermarkets – a busy, noisy one tires me out more...
I still drive for up to an hour in an automatic, perhaps 3/4 hr in a manual, but cannot converse unless the road in front is straightforward. Nor...
Backtracking for a moment on @Trish 's comments about muscle "fatigue", when I first went down with ME I had no diagnosis, no supportive GP, and...
In a way this is like Russian roulette. There may only be one cartridge in the gun (there may be none!), but the consequences are terrible. There...
If you want to search for ME, and avoid every blog that uses "me", put it in square brackets [ME], and that carries out an exact search. Well, at...
But Limericks, like my dog's hair, Just turn up in heaven knows where: You think you are clear, Then more rhymes appear: Escape them? You haven't...
@Barry , we can't continue with the plot if people keep mixing us up. They might work out that we are in fact the same person. Or, in fact, that...
Not my link, I'm afraid @NelliePledge
Thinking about my own early days with ME, I carried on working for 2½ years (no diagnosis, no-one acknowledging how ill I was, mortgage to pay),...
Bob and I were members, way back. We objected, and to Colin's push on the Lightning Process, and he became very unpleasant about it. It is far...
Separate names with a comma.
