Agreed. I have less issue with these terms if used from a pure proper philosophy perspective of good thinking and pulling out the fallacy and...
Good quotes picked out all very interesting. The term ‘testimonial quieting’ certainly strikes home as driven through everything here and a big...
I’m sure that the same will be said for most drug trials but I can’t be the only one who I’m really not keen at all in going anywhere near benzos....
I have worries about the psychological harm of someone- whatever their flavour in the HCPs - jumping in micro-managing and asserting phrases like...
Indeed. I’m not sure how helpful without changing the situational or if it does anything for the illness but I guess at least it means access if...
Re: the last para, I think that speaks to how poor ME care and management is vs where it could be as exampled by other things? I find it hard to...
Surely one issue here is lockdown/vulnerability added to anyone either applying or needing to submit a review who needed help to fill in the form....
Agreed. And b12 declines but also lots of other conditions or issues tend to start featuring, older people sleep less and so on which could all...
I agree that looking at single cortisol levels seems really old hat as a measure given what we know about what cortisol is (reactive, apparently...
Yes but at a point where they are in PEM from the visit. And with other studies that context of exertion in the run up (from a PEM perspective not...
Interesting - so they can increase their threshold by pushing it? or just by 'keeping at it'? The bodybuilding part is really intriguing given the...
Another one who is choosing not to 'get' what PEM is. I do think that s4me, forwardME and all allieds probably are needing to come together on...
Let me guess we've now gone full logic-warp into if we fix MECFS 'fatigue' then they'll sell that as a cure for 'feeling old'?... wonder if there...
Agreed. My synacthen measures were almost identical 12years apart. Different working position (very full time -> nothing), exertion levels (if you...
So they all had to do a trip to the clinics then at some point in the next 3 days get up in the morning - so they will likely have over-exerted...
Don't forget the loop where the existence of these people and their 'research' (read marketing as it is those who are delivering said 'therapy'...
Agree it is more complex than this. I wouldn't want people to think/it wouldn't cure all ME/CFS to just put people on strict regimes of less...
Interesting episode the doctor from the Evelina says 'we have a model for treatment, but that doesn't work for everyone' - what is this model...
It also hugely depends for ME/CFS on how you categorise/define 'hypersensitivities' and the severity of the condition. ie I wouldn't be surprised...
Agreed. It is an important area. I'd also like the distinction/aspect where it mightn't be in the 'hypersensitive' zone but noise/light being...
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