I seem to remember watching a programme about iceland's genetic databases and them being a frontrunner for this area. I just wish I could remember...
I'm really glad that you've been involved in this and bring that on-the-ground experience. I find/think the work towards developing physiological...
Thank you for confirming Sarah, it is interesting to just help try and get my head around/picture it. The more I think about it and try and do so...
And there are big gaps there should not be just in as far as having a 'register' of those with ME currently and shockingly. We don't know 'how...
It's also potentially 'entryism' https://en.wikipedia.org/wiki/Entryism particularly when you think about the tendency of those from BPS...
It reminded me of this too @Arvo coild you write back and ask them to provide proof of when the decision was published? surely the 6 weeks can...
I think these statements are relevant to the current thread on developing PROMs on the basis it seems the ethics statements claim here if patients...
100% agree on trials. In fact this should be over e.g. 2yrs follow up (and someone should be able to come up with a way it is a 'pattern'...
I’m sorry I haven’t read your comment in full yet (but looking forward to doing so when I have a moment where I’m better set up to make the most...
Well put
https://www.s4me.info/threads/the-process-of-cbt-for-cfs-which-changes-in-perpetuating-cognitions-and-behaviour-are-related-to-a-reduction-in-fatig...
sadly I think whether there were patients doing it or not and whether their content was dry, scientific and helpful or something else there would...
Thanks Sarah, I did do a quick read of his page and noted these things - and nice to have you confirm he is a top bloke and you know him well. I...
Thanks that is an interesting point, and you've flagged that I've missed taking it from that angle - and one which might well have merit given...
Hi Sarah, Nice to see you here and thanks for contributing and telling us about your background and experiences. Just so that I can...
Agreed. I think that airing valid concerns on the basis of what has tended to happen historically isn't something that should raise an eyebrow...
I've had a quick look at Dr Mike Horton and notice this one as a recent paper he was contributor on. Does this give a sense of what he/you as a...
I'm sorry but how dare they use such a poor patient cohort and claim it representative. Not only should they be seeking those who are severe and...
I agree, and it is really nice to see things like this that are starting to focus on getting the magnitude and terminology right to stop the...
I’d be eagle-eying the drop-outs on that one. To see whether what they achieved was using CBT as krypton factor to wheedle out the most severely...
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