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Page 15 of 17
  1. NelliePledge
    Post

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    Good to see the involvement of Professor Tyson. Hopefully she can help get the message out to her profession.
    Post by: NelliePledge, Feb 3, 2023 in forum: Long Covid research
  2. NelliePledge
    Post

    News from Scotland

    Presume this is the statement on behalf of the Scottish Government in closing the debate rather than an SNP policy statement.
    Post by: NelliePledge, Feb 3, 2023 in forum: Regional news
  3. NelliePledge
    Post

    USA: Dr Eric Gordon

    $97….. to be bombarded with marketing
    Post by: NelliePledge, Feb 2, 2023 in forum: USA clinics and doctors
  4. NelliePledge
    Post

    UK: PIP appeals - advice, recommendations?

    All the best @josepdelafuente
    Post by: NelliePledge, Feb 2, 2023 in forum: Work, Finances and Disability Insurance
  5. NelliePledge
    Post

    Cochrane: Physical interventions to interrupt or reduce the spread of respiratory viruses, 2023, Jefferson et al

    I’ve had Covid once and I will still wear a mask if I have to go into crowded space as even though it wasn’t severe I don’t want it again as I...
    Post by: NelliePledge, Feb 2, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  6. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    It’s still ongoing so the focus of project should be and no doubt is on what could be done to expand publicity, coming up with ideas and the...
    Post by: NelliePledge, Feb 2, 2023 in forum: Recruitment into current ME/CFS research studies
  7. NelliePledge
    Post

    Rethinking the Standard of Care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2019, Friedberg, Sunnquist and Nacul

    I think it’s correct that pacing is not just breaking activities down. I call that micro pacing. The first level correctly highlighted by Hutan...
    Post by: NelliePledge, Feb 2, 2023 in forum: ME/CFS research
  8. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I don’t know the ins and outs of patient recruitment but I think having 17,000 questionnaire results and so far 9000 DNA samples is not to be...
    Post by: NelliePledge, Feb 1, 2023 in forum: Recruitment into current ME/CFS research studies
  9. NelliePledge
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    It’s a challenge given the current state of things generally in the health service being a potential excuse to be deployed for inactivity by them...
    Post by: NelliePledge, Feb 1, 2023 in forum: Recruitment into current ME/CFS research studies
  10. NelliePledge
    Post

    Preprint: Prediction of Long COVID Based on Severity of Initial COVID-19 Infection: Differences in predictive feature sets... 2023 Socia et al

    Presumably the normal usage of the term functional rather than the euphemism for psychosomatic
    Post by: NelliePledge, Jan 31, 2023 in forum: Long Covid research
  11. NelliePledge
    Post

    ME payback timescales from trauma and recovery

    Hi @Sallycatherineharris.I’m sorry you had a fall, nasty one as you broke your hip, you must have been pretty bruised and shaken up. It’s only 4...
    Post by: NelliePledge, Jan 31, 2023 in forum: General and other signs and symptoms
  12. NelliePledge
    Post

    Stress-Induced Transcriptomic Changes in Females with ME/CFS Reveal Disrupted Immune Signatures, 2023, van Booven et al.

    Yep - if they’d said physical stress it would be clear.
    Post by: NelliePledge, Jan 31, 2023 in forum: ME/CFS research
  13. NelliePledge
    Post

    Beyond the case numbers: Social determinants and contextual factors in patient narratives of recovery from COVID-19 2023 Hitch et al

    Despite it all being old news information to us the fact that it’s badged with Covid 19 is no doubt meaning that people who wouldn’t hear these...
    Post by: NelliePledge, Jan 31, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  14. NelliePledge
    Post

    Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review 2023 Mullard, Greenhalgh et al

    Would be interesting to see Greenhalgh interviewed by @dave30th if that could happen
    Post by: NelliePledge, Jan 31, 2023 in forum: Long Covid research
  15. NelliePledge
    Post

    In Progress: "One Step at a Time" - an Internet-delivered Treatment for Patients Moderately Impaired by Bodily Distress Syndrome..., 2021 -

    What does one step at the time even mean?
    Post by: NelliePledge, Jan 28, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. NelliePledge
    Post

    Effects of Yijinjing Qigongin Alleviating Fatigue, Sleep Quality and Health Status on Patients with Chronic Fatigue Syndrome: ... 2023 Xie et al

    My limited experience of doing Tai Chi and yoga when I was healthy is that albeit the movement is smooth and not jarring it is like dance a...
    Post by: NelliePledge, Jan 28, 2023 in forum: ME/CFS research
  17. NelliePledge
    Post

    Covid-19 vaccines and vaccinations

    Here is the announcement by U.K. committee on vaccines about the proposed new approach for 2023 it’s fairly straightforward to understand without...
    Post by: NelliePledge, Jan 26, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  18. NelliePledge
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Great to see the solidarity :thumbup:
    Post by: NelliePledge, Jan 25, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. NelliePledge
    Post

    The $10 test

    I kept attending because I wanted the box ticked.
    Post by: NelliePledge, Jan 25, 2023 in forum: Subjective outcome measures (questionnaires)
  20. NelliePledge
    Post

    Poll - In your opinion, is it worth experimenting with therapeutics of unknown efficacy?

    Tremor also a common side effect of Pregabalin @shak8
    Post by: NelliePledge, Jan 24, 2023 in forum: Drug and supplement treatments
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