I think you have a fair point. I was amused by your reference to the antebellum. What word might be better is another matter.
Suppose that was pre-exertional.
In my opinion we need to define "post" - how long after, "exertion/al" remembering that in any illness much normal activity will be an exertion,...
Perhaps a category of "post activity malaise" needs to be added for conditions such as sarcoidosis. The experience there for many is beyond PEF...
Has it been confirmed in Long C on a 2nd day CPET or sth?
I am sorry for your experience and I agree that PEM is not appreciated enough whether PEM of ME or post exertional sarcoid phenomena - and neither...
Kitty. JE. This, from a patient, may interest you. "Chronic, multi system here. Full on fatigue from the minute I wake until bed. Any activity,...
This is interesting to me as I carry Pompe's disease (one allele, insufficient GAA enzyme) but should be without overt symptoms. This is a...
Kitty, Reply above (failed to link , sorry)
Sorry Jonathan I missed your last sentence. That would be at the severe end but may be most common. I don't know the mild/moderate/severe...
The length of relapse may vary within ME, so if sarcoid exertion response is too short for PEM so is less lengthy ME! The specific type of...
I think sarkies do crash but whether the crash is the same as PEM I do not know. Then again I think ME as diagnosed is an umbrella and also with...
Jonathan Re. sarcoidosis: the key matter is that the fatigue is marked and often markedly beyond what one would normally expect for the degree of...
I don't go along with your "no reason....same" . How would you account for relief of symptoms by stressors mentioned? Don't the testimonies...
Thanks
I know of similar stories in numerous illnesses. My take is that genes, health status, exposure to toxins, pathogenic organisms may all play a...
A man with your surname could not think otherwise.
Because the BPS approach to ME, fibro etc. is that the conditions are not of physical aetiology so when we say mind can't cure cancer, they will...
Sorry I can't do the quotes so I will answer in ablock,. Apologies. Our thoughts and emotions etc feed back onto some of our bodily functions....
Sorry Jonathan, I wrote a considered response (imo) but I wiped it by poor keyboard technique. Reprising as best I can: I would prefer "input" to...
Separate names with a comma.
