As far as I can remember from Staci's story about the runner, they weren't convinced she really did have ME, functioning at that level, until...
Hi, I've lost track of where i should be posting comments about the Dialogues project and requesting help. https://www.dialogues-mecfs.co.uk...
Hi @lunarainbows, I sympathise with that, because I worry about my daughter's future too. But I'm afraid there is no way I can make the Wellcome...
Not in May, but probably in the Autumn if it seems safe and possible.
I'm collecting together a list of charities and organisation who have embedded or linked to the Dialogues project and videos... to send to...
Thank you very much to everyone who has been posting, tweeting and linking to the videos so effectively, especially Tom and Linda. Please keep it...
And Hypersensitivity https://www.dialogues-mecfs.co.uk/films/patients-experiences/ [ATTACH]
The last two of the Patients' Accounts of Symptoms are now up! Pain and Hypersensitivity. Thanks to every one who contributed to all these videos....
Thanks for the suggestions. I've actually covered the 'gradually increasing exposure' myth in the video @JemPD . I've got a bit more time to think...
I was looking for something to go on the website beside the Hypersensitivies video. I don't think there is much that can be said about about the...
That's good to know. Thanks.
I'm pretty certain both contributors didn't have it before ME. I think John said he'd had a good memory for names and faces and Anna certainly...
Thank you very much for all your efforts with getting these videos out Tom. It was a while before I saw you were posting the first ones separately...
[ATTACH] And another two videos uploaded - Sleep Dysfunction and Orthostatic Intolerance. I think teh OI one is worth watching and thinking about...
[ATTACH] The forth of the Patients' Accounts of Symptoms videos - 4. Cognitive Impairment - is now...
The third in the collection of Patients' Accounts of Symptoms is now up - Post-exertional malaise or Post-exertional symptom exacerbation... as...
Hi Jem, Thank you very much. I'm so glad it was useful for you. I saw your post yesterday? about a video to show neighbours and was wondering...
Activity Management – Pacing. https://www.dialogues-mecfs.co.uk/films/pacing/ A new Dialogues from a neglected illness video released. Pacing...
Thanks @Kalliope. I'm really glad to have these up and the next ones nearly ready. I'm hoping they make quite a substantial body of evidence as a...
We've just made a few minor corrections to the Severe ME videos and added a postscript to the Hospital one - an idea mentioned to me recently,...
Separate names with a comma.
