@lunarainbows , Sorry I'm a bit slow at spotting things... That would be great - perhaps nearer Easter 2021 would be OK.
I just re-noticed the earlier posts about the MEA and Charles Shepherd and wanted to say that we had a very good and long session interviewing...
Yes, as Chris Snell pointed out, Aerobic exercise for a person with ME is not aerobic! - "For many ME/CFS patients aerobic exercise is not...
Hi @lunarainbows , I now have a better idea of when the event at the LSHTM will be. We can't get the videos all ready for this May's ME Awareness...
Not really. I am really stuck with the research side of things and putting it off for now. I recognise bits of Jonathan's paper as similar to...
Ed Scully seemed astonished that people could die from ME when he was talking to Nina afterwards, at which point I gave him a dvd of Voices and...
I think that when the film came out - 2011 - people really didn't know so much about very, severe ME and the abuse of patients. The film was...
Thank you for taking the time to transcribe the videos. As I mentioned in a post I have transcripts of the videos already, which I try to keep...
I'm editing the Introductory video at the moment - starting from scratch again, now I have some more really good material to draw on. The main...
Thanks. Do please do that. I haven't looked at this site for a couple of days as I became a Granny on Sunday night!!!!! Sonya C has told me that...
MEA do not seem interested. I contacted CS about being filmed, a couple of times, but had a very unenthusiastic response - very busy - and I...
Ah, yes! I remember. Please can you sen me your email address by using the website form, though. It only goes to me. I'd rather email, as I don't...
The project as a whole, or most of it, is to be shown on those sites. It is not ready to be put there yet, because it isn't made! - although...
Thanks @rvallee That is very generous of you and I'm glad you specially like the second part. I do too. It was a substantial award from Wellcome...
Can you send me the details of the event/day. I would be very glad for it to be used for the purpose for which is was made. You can contact me...
Yes, I agree. I've got the video material for a demonstration of doing a CPET in another video. The exercise bike clips are from the demonstration...
This Wellcome project and funding is for a website with a group of videos and links to supporting material, not for individual videos. We will...
I'm sorry I only just realised there was more feedback over the page! Thank you very much. That sounds as though it would be wonderful to have...
The first two short videos for "Dialogues for a neglected illness " -" Graded Exercise Therapy for ME/CFS" - in two parts - is now available to...
I think I should run it past Caroline first as she is selecting and contacting patients for the project. Thanks Linda.
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