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  1. Daisybell
    Post

    WHO ME/CFS coding - April to May 2018

    Very sorry to hear this news @Dx Revision Watch - your expert opinion should be listened to, and I’m sorry that it hasn’t been/won’t be by this...
    Post by: Daisybell, May 8, 2018 in forum: Disease coding
  2. Daisybell
    Post

    David Tuller Trial By Error: My Visits with Alem Matthees

    QMUL should read that blog and hang their heads in shame. Oh Alem......:cry:
    Post by: Daisybell, May 8, 2018 in forum: General ME/CFS news
  3. Daisybell
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    Can iplayer be accessed from overseas?
    Post by: Daisybell, May 4, 2018 in forum: ME/CFS research news
  4. Daisybell
    Post

    A graded exercise therapy circuit class for rheumatology pain patients (Warning - may raise blood pressure!)

    I’m sure the irony of writing that 11/16 fibro patients failed to attend all the sessions, and also that patients need help to engage in ‘their...
    Post by: Daisybell, May 2, 2018 in forum: General ME/CFS news
  5. Daisybell
    Post

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    Fingers crossed for you @TrixieStix that you get improvement...
    Post by: Daisybell, Apr 29, 2018 in forum: Immune: Autoimmune and Mast Cell Disorders
  6. Daisybell
    Post

    Mike's EU Marathons

    Great t-shirt @Mike Harley - I love it!
    Post by: Daisybell, Apr 28, 2018 in forum: General ME/CFS news
  7. Daisybell
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    If MS believes his ‘job is to write clear papers’ then he must have sleepless nights over PACE.... are there many papers less clear?
    Post by: Daisybell, Apr 28, 2018 in forum: General ME/CFS news
  8. Daisybell
    Post

    Norwegian professor on ME and gender dystrophy

    I’d heard of ME before I got sick, but the general thread of what I ‘knew’ was around the whole ‘yuppie flu’ thing. Now some people might call me...
    Post by: Daisybell, Apr 24, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Daisybell
    Post

    Epstein-Barr virus protein can “switch on” risk genes for autoimmune diseases

    Apologies if this is a dumb question... but I’m not sure I am totally clear about what you are saying @Jonathan Edwards ... If B cells are...
    Post by: Daisybell, Apr 19, 2018 in forum: Other health news and research
  10. Daisybell
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    77% now - some lovely person has just donated $500 .....
    Post by: Daisybell, Apr 19, 2018 in forum: General ME/CFS news
  11. Daisybell
    Post

    What is Action for ME's current (March 2018) position on the PACE trial?

    :rofl::rofl::rofl:
    Post by: Daisybell, Apr 19, 2018 in forum: General ME/CFS news
  12. Daisybell
    Post

    Michael Sharpe skewered by @JohntheJack on Twitter

    But - if we ‘choose how active to be’ - then surely the actometer results should mirror the CBT and GET results, given that those two treatments...
    Post by: Daisybell, Apr 17, 2018 in forum: General ME/CFS news
  13. Daisybell
    Post

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    #sharpendofME
    Post by: Daisybell, Apr 9, 2018 in forum: General ME/CFS news
  14. Daisybell
    Post

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    I think we’re damned if we do and damned if we don’t..... The public perception of pwme has been so influenced by the bps brigade and the media...
    Post by: Daisybell, Apr 7, 2018 in forum: General ME/CFS news
  15. Daisybell
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I had visions of EC doing a lecture and finding the whole audience was DT clones!!!!!
    Post by: Daisybell, Apr 1, 2018 in forum: General ME/CFS news
  16. Daisybell
    Post

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Great news!
    Post by: Daisybell, Mar 31, 2018 in forum: Advocacy Projects and Campaigns
  17. Daisybell
    Post

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    So glad the prednisone is helping... fingers crossed for the Plaquenil!
    Post by: Daisybell, Mar 31, 2018 in forum: Immune: Autoimmune and Mast Cell Disorders
  18. Daisybell
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Donated - thank you @dave30th - loving your work!
    Post by: Daisybell, Mar 30, 2018 in forum: General ME/CFS news
  19. Daisybell
    Post

    PACE trial TSC and TMG minutes released

    So essentially PACE was a trial of how to stop those pesky patients from complaining? Obviously actual activity didn’t need to be measured -...
    Post by: Daisybell, Mar 28, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  20. Daisybell
    Post

    Higher prevalence of ‘low T3 syndrome’ in patients with chronic fatigue syndrome: A case-control study (2018) Ruiz-Núñez et al.

    It is also absolutely possible to be hyperthyroid and still have ME symptoms - although that rather surprises the doctors...
    Post by: Daisybell, Mar 25, 2018 in forum: ME/CFS research
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