Slightly off-topic (which seems to be what my brain does nowadays...), I have a chook who is over 6 years old. It’s been interesting watching her...
Is there no way to actually have some objective measures in a fatigue questionnaire?
I seem to be ok with most things. Some medications are not ok - I had horrible side-effects from what my GP called ‘homeopathic doses’ of...
@Peter Trewhitt i find my spelling deteriorates significantly when I am feeling bad. I transpose letters/leave letters out etc. Normally spelling...
For me, I think working memory tests would pick up poor performance, and also any tests with competing demands for attention or where there are...
I’ve often thought it would be good to have a study looking at cognitive function in people with ME, head injury and normal controls.... I...
I would find it most surprising if she hadn’t been harassed, but to me there are two issues to be drawn from her reaction - firstly, the fact that...
I hope that this leads to improvement for you.
Still - methinks you may have started out with better software than me!
For me, the exhaustion post-exertion is both peripheral -in the muscles used, and central. It’s the central part that is the telling bit I think....
Sadly, I find that sleeping alone is essential to actually getting a decent amount of shut-eye.
@Woolie - out of interest, are the doctors now thinking you don’t have/have never had ME, now that you have an alternative diagnosis?
Do you mean that you wake up feeling good? Like you are ready to bounce out of bed? I don’t know if I am right but that’s my interpretation of the...
My gut slows down when I’m in a crash, so yes bloating and constipation. Also muscle cramps everywhere. I take extra magnesium which helps those...
@Graham - do you think it would be helpful for there to be more names on the letter or not? There is no way my foggy brain would be able to write...
My other half got two minutes in as well, and then said ‘I don’t need to watch any more. That woman is mad.’ He reckoned that she comes across as...
Bliksrud just sounds annoyed that he is receiving blood samples for metabolic testing. Those pesky patients - why won’t they just accept that...
So no likes for my Facebook post, and no comments, and no donations. I am invisible....
I’ve just shared the link on Facebook, which I never normally would do. Probably around half of my Facebook friends don’t know I’m ill- but I’m...
Well done for making it safely half way round the world! Maybe, if you can now de-stress a bit, your body might repair your lungs.... fingers...
Separate names with a comma.
