Wish I had something useful to suggest.... Do you think there is anything to be gained from seeing a respiratory specialist? Would your GP refer?
Hello @Mike Harley - great to see you here! In case I haven’t told you - I think what you have done and are doing for ME awareness is totally...
[ATTACH] Edited to add - can you see the halo?
The article also says that taking biotin might affect your TSH test results - something to be aware of for those of us having regular blood tests...
I really hope that the study does uncover some clues, despite the negative overall finding. I was certainly pinning my hopes on rituximab so I’m...
@Barry - re the battery analogy - I said to my husband that my alternator is faulty! The battery won’t charge up and it won’t stay charged... it...
But there isn’t always an acute infection when an animal isn’t well.... for instance, I’ve just had a chicken with some problems. Birds typically...
It’s very clear to me when one of my animals isn’t well - they go off their food, hunch up, look miserable and take themselves away from the...
She writes well, I think.... I like her tone.
It wouldn’t surprise me if there turn out to be both auto-immune and auto-inflammatory variants of ‘ME’...
@Trish I think I would try to open up conversation with the lead researcher.... if there is a way to make this a positive experience for you and...
I answered 1. I think I’m fairly stable overall, but I have days/weeks where I feel worse. I had one period of significant improvement when I went...
Positive results from the rituximab study and the cyclophosphamide study... Easier access to benefits for pwME Global acknowledgement of this as a...
Slightly off-topic, but if you will allow me.. My sister-in-law sent me an email a month ago saying she had just heard about the Lightning...
@Hutan - do you think your GP has any idea of how incredibly insensitive she has been? I can’t believe she would use those words... would a letter...
I find the notion of ‘secondary benefit’ to be particularly unpleasant. It shows a remarkable lack of insight on the behalf of the...
Thanks @Andy :)
Is there any way to watch from outside the uk?
So is she presenting just to have her ego bolstered? In which case, she must be in trouble......
I think she’s delusional about how she comes across though. I mean - you don’t have to know anything about the history of ME to feel creeped out...
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