@Squeezy , yes I did. But i am not so convinced about Lyme being still active . My test was consistently positive until after IV ceftriaxone. And...
Hello Another weird thread of mine. Anyone has this feeling from being cut-off from your body from neck down? I actually wasn't aware of...
I have had Lyme and bartonella since very early, so it goes with that. I cant say if it's from birth but as a toddler I did already have tendency...
Yes, I thought about this when I wrote the thread. It's simply "worsening" or a crash triggered by no activity, but happens very fast. Cant be...
Endocrine subtype? I was also hypothyroid from 10 or so and it wasnt treated until 20, so it is hard to say what was ME and what Hashimoto then,...
@Mij, that's what we are discussing here actually - resting def makes me worse, if it's more than half day (after active few days). I tried to...
@JamieS, Yes, this is exactly how it is for me. Optimal is up to 4 hours in bed, then go back to activity. If more than this, I just get worse...
Also, so many times I feel like I am dying .. but then when I decide to get up, go out, after 5 minutes I feel great (for CFS person :) ), smile,...
Same happens to me recently, I felt better - went roller skating, then had severe mental PEM attack later. One day I went out 3x in a day, which...
Absolutely. I didnt yet measure OI, but i lay whenever possibly I can lay, although I dont feel much drain from sitting (when i socialize). I...
Yes for me it doesnt give PEM, when I experimented with treatments I had first time in life attacks of such mental PEM, i def would recognize it....
I'm sure this is not the case. I had this situation at least 100 times. I feel 1st day need to rest, that's okay, 2nd day is totally depending on...
I am nonstop reading, chatting, watching movies. I never ever rest my brain (although I have also ADHD -so not very productive). But I didnt have...
Hello I'm trying to figure out how my ME/CFS affects me, it is so complex. I noticed that each time when I fall into a trap of staying home 2...
So yesterday I woke up at 3 pm (which veryyyyy rarely happens last 1,5 year since I managed to make my non-24 back to Delayed, and then even...
Vasoactive intestinal peptide, CIRS -chronic inflammatory response syndrome aka biotoxin illness... mold... ya know Shoemaker guy.
I have circadian sleep disorder. it was delayed phase from 0-19 yrs, then 19-29 yrs was non-24 hour sleep wake, was hard to not 'cycle' , days...
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