Yes, it seems to be another condition where diagnosis is a huge issue. I have a friend who took years to be diagnosed, and only through her own...
I think the Jenga game may be about to commence in earnest. If there is replication with a different control does the cognitive dissonance get...
Oxford/ Fukada for CFS?
In a row?
I would love to concur Barry, but given the prolonged feet dragging re more than one paedophile enquiry it would seem children and the...
Yep. Sore throat. Multiple swollen glands ( i never knew there were so many prior to my daughter getting ME) PEM brings sore throat on but...
Definitely worth tweeting
Yes that is a good point. Also deflects scrutiny from Bristol - breathing space before MAGENTA reports/ publishes. There also has to be a...
Is it worth tweeting to Coyne with smile data ? He has quite a few followers. @JenB - this is kids! Dr Geraghty had been prolific recently too -...
That is what makes this more concerning. Overall reputation of the institution bestows a confidence that may not be merited
That supposes you consider the underlying condition to be real
I think a non understanding of PEM underlies this. My daughter on this scale is 25-30. On a good day, yes she could potentially walk with a cane...
We did have a member with direct experience - not positive. She was also deemed to have a COI for NICE Guidelines ( potentially due to stated...
Shared amongst Facebook closed groups with suggestion that Glasgow venue could use it on 11th ( George Square so big footfall potential) How...
Brilliant article @chicaguapa
Thanks @Adam pwme . this is a very powerful advocacy resource. we need to get it beyond the ME sounding baord that is sufferers and their...
H Here there is a coded system. with specific codes for authorised and unauthorised attendance - separate codes for medical appointments etc....
In Scotland all hell broke loose over illegal data sharing between schools and third parties ( including health , social services) a few years...
me neither.
well done @Tilly
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