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  1. Amw66
    Post

    frontiers in Pediatrics: Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome by Boneva, Unger et al 2019

    Yes, it seems to be another condition where diagnosis is a huge issue. I have a friend who took years to be diagnosed, and only through her own...
    Post by: Amw66, May 7, 2019 in forum: ME/CFS research
  2. Amw66
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I think the Jenga game may be about to commence in earnest. If there is replication with a different control does the cognitive dissonance get...
    Post by: Amw66, May 7, 2019 in forum: ME/CFS research
  3. Amw66
    Post

    The pathway from glandular fever to chronic fatigue syndrome, 2011, Moss-Morris et al

    Oxford/ Fukada for CFS?
    Post by: Amw66, May 7, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Amw66
    Post

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    In a row?
    Post by: Amw66, May 6, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  5. Amw66
    Post

    General news about Fabricated and Induced Illness syndrome (FFI)

    I would love to concur Barry, but given the prolonged feet dragging re more than one paedophile enquiry it would seem children and the...
    Post by: Amw66, May 6, 2019 in forum: Other psychosomatic news and research
  6. Amw66
    Post

    Sore throats swollen glands

    Yep. Sore throat. Multiple swollen glands ( i never knew there were so many prior to my daughter getting ME) PEM brings sore throat on but...
    Post by: Amw66, May 5, 2019 in forum: General and other signs and symptoms
  7. Amw66
    Post

    Psychiatrist Peter White at the Royal Society of Medicine 2008 - Defining CFS/ME

    Definitely worth tweeting
    Post by: Amw66, May 5, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Amw66
    Post

    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    Yes that is a good point. Also deflects scrutiny from Bristol - breathing space before MAGENTA reports/ publishes. There also has to be a...
    Post by: Amw66, May 5, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Amw66
    Post

    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    Is it worth tweeting to Coyne with smile data ? He has quite a few followers. @JenB - this is kids! Dr Geraghty had been prolific recently too -...
    Post by: Amw66, May 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Amw66
    Post

    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    That is what makes this more concerning. Overall reputation of the institution bestows a confidence that may not be merited
    Post by: Amw66, May 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Amw66
    Post

    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    That supposes you consider the underlying condition to be real
    Post by: Amw66, May 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Amw66
    Post

    Action for M.E.'s big survey, 2019

    I think a non understanding of PEM underlies this. My daughter on this scale is 25-30. On a good day, yes she could potentially walk with a cane...
    Post by: Amw66, May 4, 2019 in forum: General ME/CFS news
  13. Amw66
    Post

    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    We did have a member with direct experience - not positive. She was also deemed to have a COI for NICE Guidelines ( potentially due to stated...
    Post by: Amw66, May 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Amw66
    Post

    Stop Ignoring ME Video

    Shared amongst Facebook closed groups with suggestion that Glasgow venue could use it on 11th ( George Square so big footfall potential) How...
    Post by: Amw66, May 3, 2019 in forum: Advocacy Projects and Campaigns
  15. Amw66
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Brilliant article @chicaguapa
    Post by: Amw66, May 3, 2019 in forum: General ME/CFS news
  16. Amw66
    Post

    Stop Ignoring ME Video

    Thanks @Adam pwme . this is a very powerful advocacy resource. we need to get it beyond the ME sounding baord that is sufferers and their...
    Post by: Amw66, May 2, 2019 in forum: Advocacy Projects and Campaigns
  17. Amw66
    Post

    SMILE trial data to be released

    H Here there is a coded system. with specific codes for authorised and unauthorised attendance - separate codes for medical appointments etc....
    Post by: Amw66, May 2, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Amw66
    Post

    SMILE trial data to be released

    In Scotland all hell broke loose over illegal data sharing between schools and third parties ( including health , social services) a few years...
    Post by: Amw66, May 2, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. Amw66
    Post

    Illness perceptions in adolescents with CFS (2019) Cara Haines, Maria Loades, Cara Davis

    me neither.
    Post by: Amw66, May 2, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Amw66
    Post

    Social Services Can Threaten Families of Children with Chronic Fatigue

    well done @Tilly
    Post by: Amw66, May 2, 2019 in forum: General ME/CFS news
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