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Page 18 of 33
  1. Amw66
    Post

    EDS Rheumatologist referral query

    Yes, their daughter has ME, made worse by GET. In Scotland paediatric input can end at 16 . I have a feeling it was the paediatrician who...
    Post by: Amw66, Mar 24, 2019 in forum: General clinical care
  2. Amw66
    Thread

    EDS Rheumatologist referral query

    From Twitter tonight. This family are struggling to secure input and support for their daughter Inpatient GET episode left their daughter severe....
    Thread by: Amw66, Mar 24, 2019, 12 replies, in forum: General clinical care
  3. Amw66
    Post

    Visit at the CureME Team, London - UK

    Thank you @mariovitali . I hope your perseverance pays off.
    Post by: Amw66, Mar 23, 2019 in forum: ME/CFS research news
  4. Amw66
    Post

    Mechanistic Insights into the Pathophysiology of CFS/ME: Examining Nrf2 Antioxidant Gene Expression & its Role in Combating Oxidative Stress, ongoing

    Dundee was where muscle research for children with "CFS" was done . Tymes promoted it, think it was funded by ME Research or Invest . Dundee has...
    Post by: Amw66, Mar 23, 2019 in forum: ME/CFS research
  5. Amw66
    Post

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Thanks for your explanation. The situation is confusing as antivirals do seem to help some people. Anti retrovirals similarly. Whether this is...
    Post by: Amw66, Mar 23, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Amw66
    Post

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    There seems to be a deluge if such research at the moment. I hope that our NICE representatives and advisors can translate the cognitive...
    Post by: Amw66, Mar 23, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Amw66
    Post

    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Forgive me if wrong, but 30 years ago it would seem that there were more " treatment" options. Nigel Speight had good responses in severe...
    Post by: Amw66, Mar 22, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Amw66
    Post

    Springtime sleepiness - pollen or coincidence?

    Roll on 21st June!
    Post by: Amw66, Mar 22, 2019 in forum: Post-Exertional malaise and fatigue
  9. Amw66
    Post

    Springtime sleepiness - pollen or coincidence?

    We are at 55.5 Light and weather seem to gave a huge impact. We know when there is a barometric change from headache status! Whether some of...
    Post by: Amw66, Mar 22, 2019 in forum: Post-Exertional malaise and fatigue
  10. Amw66
    Post

    Springtime sleepiness - pollen or coincidence?

    Interesting - my daughter has been experiencing the same thing over the past week. She too rarely feels sleepy, except now. What lattitiude are...
    Post by: Amw66, Mar 21, 2019 in forum: Post-Exertional malaise and fatigue
  11. Amw66
    Post

    ME charities' response to the Reuters article

    this
    Post by: Amw66, Mar 21, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Amw66
    Post

    UK House of Lords/ House of Commons Questions

    Go Nicky Morgan!
    Post by: Amw66, Mar 21, 2019 in forum: General ME/CFS news
  13. Amw66
    Post

    The Bigger Picture

    We already have this. You can self refer to an MSK unit via website or phonecall.
    Post by: Amw66, Mar 21, 2019 in forum: Other health news and research
  14. Amw66
    Post

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    Pantomime meets Emporer' s new clothes..
    Post by: Amw66, Mar 21, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Amw66
    Post

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    I would agree - the lack of curiousity is curious in itself.
    Post by: Amw66, Mar 21, 2019 in forum: General Advocacy Discussions
  16. Amw66
    Post

    ME charities' response to the Reuters article

    Decent co-ordinated PR is direly needed. That this has gone on for so long with no co-ordinated response just perpetuates the situation.
    Post by: Amw66, Mar 20, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. Amw66
    Post

    Steve Topple: The media is waging a coordinated war against chronically ill and disabled people

    Perhaps tackle from a different route. Scottish coverage ( Parliament, newspapers and BBC) has been sympathetic in the past few years- perhaps a...
    Post by: Amw66, Mar 19, 2019 in forum: General ME/CFS news
  18. Amw66
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    Yes, I think the RNA research should be interesting. My daughter has symptoms of glandular fever during PEM, and we know that there is an immune...
    Post by: Amw66, Mar 19, 2019 in forum: ME/CFS research news
  19. Amw66
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    Downregulation of T3 may be a protective measure. I think the hibernation hypothesis is an apt one. Something has gone very wrong and the body is...
    Post by: Amw66, Mar 19, 2019 in forum: ME/CFS research news
  20. Amw66
    Post

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Sadly not a non article for those with no knowledge of the condition.
    Post by: Amw66, Mar 19, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
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