Yes, their daughter has ME, made worse by GET. In Scotland paediatric input can end at 16 . I have a feeling it was the paediatrician who...
From Twitter tonight. This family are struggling to secure input and support for their daughter Inpatient GET episode left their daughter severe....
Thank you @mariovitali . I hope your perseverance pays off.
Dundee was where muscle research for children with "CFS" was done . Tymes promoted it, think it was funded by ME Research or Invest . Dundee has...
Thanks for your explanation. The situation is confusing as antivirals do seem to help some people. Anti retrovirals similarly. Whether this is...
There seems to be a deluge if such research at the moment. I hope that our NICE representatives and advisors can translate the cognitive...
Forgive me if wrong, but 30 years ago it would seem that there were more " treatment" options. Nigel Speight had good responses in severe...
Roll on 21st June!
We are at 55.5 Light and weather seem to gave a huge impact. We know when there is a barometric change from headache status! Whether some of...
Interesting - my daughter has been experiencing the same thing over the past week. She too rarely feels sleepy, except now. What lattitiude are...
this
Go Nicky Morgan!
We already have this. You can self refer to an MSK unit via website or phonecall.
Pantomime meets Emporer' s new clothes..
I would agree - the lack of curiousity is curious in itself.
Decent co-ordinated PR is direly needed. That this has gone on for so long with no co-ordinated response just perpetuates the situation.
Perhaps tackle from a different route. Scottish coverage ( Parliament, newspapers and BBC) has been sympathetic in the past few years- perhaps a...
Yes, I think the RNA research should be interesting. My daughter has symptoms of glandular fever during PEM, and we know that there is an immune...
Downregulation of T3 may be a protective measure. I think the hibernation hypothesis is an apt one. Something has gone very wrong and the body is...
Sadly not a non article for those with no knowledge of the condition.
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