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  1. Amw66
    Post

    Public Educating patients or blaming them? Public education campaigns on antibiotic resistance

    If you can afford free range it is completely different. Havn' t had the cash to have anything more than a discounted organic free range chicken...
    Post by: Amw66, Feb 5, 2019 in forum: Other health news and research
  2. Amw66
    Post

    Trial By Error: And Another Prebuttal…

    I think it hints at how much there is invested in these forms of treatment . CBT is the panacea for all ills and underpins IAPT and MUS....
    Post by: Amw66, Feb 5, 2019 in forum: General ME/CFS news
  3. Amw66
    Post

    Public Educating patients or blaming them? Public education campaigns on antibiotic resistance

    Just wait til we get the double whammy of post Brexit chlorinated and antibiotic laced chickens ...
    Post by: Amw66, Feb 5, 2019 in forum: Other health news and research
  4. Amw66
    Post

    AfME survey: Support in School for children with M.E./CFS, closes Mon 18th Feb 2019

    This is piggy backing off of the surveymonkey survey done for the Educate ME project in Scotland. It may be applicable mostly to mildly affected -...
    Post by: Amw66, Feb 5, 2019 in forum: General ME/CFS news
  5. Amw66
    Post

    Closed Forward ME Group CBT/GET Survey - Tell NICE your experiences

    Am i just becoming increasingly cynical? What is the expectation from this survey - there are previous larger ones and papers including Keith...
    Post by: Amw66, Feb 2, 2019 in forum: Recruitment into current ME/CFS research studies
  6. Amw66
    Post

    UK: Blue badge blues

    Thanks @Trish . Good to know
    Post by: Amw66, Feb 1, 2019 in forum: Work, Finances and Disability Insurance
  7. Amw66
    Post

    Trial By Error: Some Thoughts About an Upcoming Article

    fall out from Crawley investigation ?
    Post by: Amw66, Jan 31, 2019 in forum: General ME/CFS news
  8. Amw66
    Post

    UK: Blue badge blues

    Thank you all for all the advice. It is much appreciated. I will read up over the weekend and draft something for our GP to look at ( she is not...
    Post by: Amw66, Jan 31, 2019 in forum: Work, Finances and Disability Insurance
  9. Amw66
    Post

    UK: Blue badge blues

    It seems to also mean can she do this all the time. Though i explained the fluctuation nature if things it seems the OT dosn't understand this....
    Post by: Amw66, Jan 31, 2019 in forum: Work, Finances and Disability Insurance
  10. Amw66
    Post

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    This. However, though @Trish is absolutely spot on with her points, it seems to be via IAFME mechanism that initiated action. I would like to...
    Post by: Amw66, Jan 31, 2019 in forum: Open Letters and Replies
  11. Amw66
    Post

    Does your ME cause sleep inversion?

    I'm glad that something is helping - hope it continues.
    Post by: Amw66, Jan 30, 2019 in forum: Sleep Disturbance
  12. Amw66
    Post

    UK: Blue badge blues

    Thanks Trish. She can walk around 100m with a stick but usually pays for it if it's done in one go - feeling faint, breathless etc edit added detail
    Post by: Amw66, Jan 30, 2019 in forum: Work, Finances and Disability Insurance
  13. Amw66
    Thread

    UK: Blue badge blues

    Our application for a blue badge has been turned down. My daughter is a bit upset, she had anticipated getting out and about a bit more, she is...
    Thread by: Amw66, Jan 30, 2019, 32 replies, in forum: Work, Finances and Disability Insurance
  14. Amw66
    Post

    Is PEM cumulative? - public thread

    I probably picked it up wrongly then. I had read it as doing things is ok up to a threshold ( like pacing) as long as the usage ties to supply...
    Post by: Amw66, Jan 30, 2019 in forum: Post-Exertional malaise and fatigue
  15. Amw66
    Post

    Is PEM cumulative? - public thread

    If my daughter overdoes it the impact does not fully hit til 48 hrs after. It' s a bit like 2 day after gym feeling but worse- with swollen...
    Post by: Amw66, Jan 30, 2019 in forum: Post-Exertional malaise and fatigue
  16. Amw66
    Post

    Is PEM cumulative? - public thread

    I found this on the other place in a post by @Hip on the McLaren-Howard, Myhill , Booth papers. It did seem to make a lot of sense. It dosn't...
    Post by: Amw66, Jan 30, 2019 in forum: Post-Exertional malaise and fatigue
  17. Amw66
    Post

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    Re paediatric categorisation above for "severe" as being ‘effectively housebound’ and the most recent paper in this thread where " severe"...
    Post by: Amw66, Jan 30, 2019 in forum: General ME/CFS news
  18. Amw66
    Post

    Is PEM cumulative? - public thread

    fatiguability rather than fatigue as a function of activity
    Post by: Amw66, Jan 30, 2019 in forum: Post-Exertional malaise and fatigue
  19. Amw66
    Post

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    GIGO
    Post by: Amw66, Jan 30, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Amw66
    Post

    BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd, 30 January 2019

    BBC Scotland have been relatively good coverage wise.
    Post by: Amw66, Jan 29, 2019 in forum: General ME/CFS news
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