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  1. Amw66
    Post

    Skin crawling/formication

    Sorry @DokaGirl , I missed this reply. From memory he has recently said that they have found higher levels of mercury in ME patients. I'll try and...
    Post by: Amw66, Jul 17, 2019 in forum: General and other signs and symptoms
  2. Amw66
    Post

    UK Event: Queen Square Advances in Mitochondrial Medicine, 16 July 2019

    Interesting stuff eta our paediatrician thought mito diseases only applied to tiny babies....
    Post by: Amw66, Jul 16, 2019 in forum: Other health news and research
  3. Amw66
    Post

    Genome-wide association study identifies eight risk loci and implicates metabo-psychiatric origins for anorexia nervosa

    This .
    Post by: Amw66, Jul 16, 2019 in forum: Other health news and research
  4. Amw66
    Post

    Genome-wide association study identifies eight risk loci and implicates metabo-psychiatric origins for anorexia nervosa

    Correlation and causation again ? Are world views so narrowly defined that the obvious is excluded . A few funny graphs...
    Post by: Amw66, Jul 16, 2019 in forum: Other health news and research
  5. Amw66
    Post

    Skin crawling/formication

    I go wonder if this is a hormonal symptom that may indicate issues with liver? Synthesis and bio transformation of many steroid hormones is part...
    Post by: Amw66, Jul 16, 2019 in forum: General and other signs and symptoms
  6. Amw66
    Post

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Whenever did objective evidence get in the way of a well reinforced poorly defined construct....particularly one with an asymmetric power balance...
    Post by: Amw66, Jul 15, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Amw66
    Post

    Novel insights of overtraining syndrome discovered from the EROS study, 2019, Cadegiani and Elias Kater

    Can we put the Nottingham exercise researchers in touch with these ones?
    Post by: Amw66, Jul 14, 2019 in forum: Other health news and research
  8. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    My daughter's favourite retort to those who think paralympic athletes reflect the aspirational goal for every disabled person - "so you're...
    Post by: Amw66, Jul 13, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Amw66
    Post

    MEA Website Survey: Physiotherapy and ME | 02 July 2019

    Yes they are trained in massage, but this tends to be either for conditions that have a noted benefit ( not really part of the ME playbook) , or...
    Post by: Amw66, Jul 13, 2019 in forum: General ME/CFS news
  10. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    Perhaps it was an assumption that school records would be made available ( assumption of a lot of things underwrites world view here) Or perhaps...
    Post by: Amw66, Jul 13, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    The heart of the matter [MEDIA]
    Post by: Amw66, Jul 12, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Amw66
    Post

    UK Teach Primary Magazine: 'A heavy weight to carry' by Claire Tripp, 2019

    Thanks @chicaguapa :)
    Post by: Amw66, Jul 12, 2019 in forum: General ME/CFS news
  13. Amw66
    Post

    Mad Cow Disease: The Great British Beef Scandal

    The problem with pesticides is that the acceptable levels are based on individual pesticides. From sowing to crop there are a multitude of...
    Post by: Amw66, Jul 12, 2019 in forum: Other health news and research
  14. Amw66
    Post

    Weighted blankets

    Bamboo is good for moisture control. My daughter's s memory foam neck pillow has a bamboo casing which seems to help. Wool is also great at "...
    Post by: Amw66, Jul 12, 2019 in forum: Home adaptations, mobility and personal care
  15. Amw66
    Post

    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Very much so. My daughter had cbt via CAHMS for anxiety. The second session was a fishing trip for early childhood trauma which she found very...
    Post by: Amw66, Jul 12, 2019 in forum: Other health news and research
  16. Amw66
    Post

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    There were a few threads re BCAAs at the other place. Many used them for "PEM busting ability"
    Post by: Amw66, Jul 12, 2019 in forum: ME/CFS research
  17. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    For a population group who are supposed to benefit from higher levels of protection, when it comes to paediatrics, careers seem to trump the...
    Post by: Amw66, Jul 12, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Amw66
    Post

    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    So this stands for NICE' s consideration. Wonderful....
    Post by: Amw66, Jul 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Amw66
    Post

    Weighted blankets

    Knitted cotton blanket, some are patterned so will have weight while still having lighter areas ( maybe not so warm?)
    Post by: Amw66, Jul 11, 2019 in forum: Home adaptations, mobility and personal care
  20. Amw66
    Post

    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Don't t despair. Although I feel that there are many routes to the same end state, there will be common pathways which may help define subsets....
    Post by: Amw66, Jul 9, 2019 in forum: General ME/CFS news
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