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  1. Amw66
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    perhaps he knows something we dont't
    Post by: Amw66, Jun 19, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Amw66
    Post

    Congressman Jack Bergman becomes Champion for ME

    Yes. I had the same reply today too
    Post by: Amw66, Jun 18, 2019 in forum: Advocacy Projects and Campaigns
  3. Amw66
    Post

    Evolving evidence about diet and health, 2018, Mente et al, Lancet

    Healthy weights may be a bit of a misnomer. The rise of the TOFI ( thin outside fat inside) whilst some overweight individuals are metabolically...
    Post by: Amw66, Jun 17, 2019 in forum: Other health news and research
  4. Amw66
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    Mid life rules out children
    Post by: Amw66, Jun 15, 2019 in forum: ME/CFS research
  5. Amw66
    Post

    UK House of Lords/ House of Commons Questions

    Here they are being rediagnosed with FND
    Post by: Amw66, Jun 14, 2019 in forum: General ME/CFS news
  6. Amw66
    Post

    Congressman Jack Bergman becomes Champion for ME

    I have emailed also - Dear Congressman Bergen I’m writing to thank you for your support for those with ME/CFS. As you will know this is a...
    Post by: Amw66, Jun 14, 2019 in forum: Advocacy Projects and Campaigns
  7. Amw66
    Post

    Inclusive Education for Students with Chronic Illness—Technological Challenges and Opportunities - Anna Wood June 2019

    paper attached
    Post by: Amw66, Jun 14, 2019 in forum: General ME/CFS news
  8. Amw66
    Post

    Inclusive Education for Students with Chronic Illness—Technological Challenges and Opportunities - Anna Wood June 2019

    Thanks @Sly Saint Nisai and Interhigh have been providing virtual real time with recorded lessons ( amongst other providers for over a decade)....
    Post by: Amw66, Jun 14, 2019 in forum: General ME/CFS news
  9. Amw66
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is it normal practice to publish a " taster" and invite comments prior to publication of the full piece? It just seems weird.
    Post by: Amw66, Jun 13, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Amw66
    Post

    Heart Rate Variability and ME/CFS

    Interesting. We have done 2 hair tests, around 6 months apart to track electrolyte/ cation status The second test showed improvement in...
    Post by: Amw66, Jun 12, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  11. Amw66
    Thread

    Sympathetic Nervous System (SNS) issues ?

    Over the past 3-4 weeks my daughter seems to have developed a SNS stuck in overdrive. It is not sustainable, making things worse. I have a call...
    Thread by: Amw66, Jun 12, 2019, 0 replies, in forum: General and other signs and symptoms
  12. Amw66
    Post

    New video: Children with ME

    Great video again @Adam pwme . Will share as widely as i can .
    Post by: Amw66, Jun 11, 2019 in forum: Advocacy Projects and Campaigns
  13. Amw66
    Post

    Researcher Interactions Patient Representative Reports from Dr Karl Morten's collaborative group, Oxford, UK

    This is total mince . ( Scottish term akin to being utter rubbish) ETA the funding being turned down, not the research. I think this just...
    Post by: Amw66, Jun 10, 2019 in forum: ME/CFS research news
  14. Amw66
    Post

    Status of CFS/ME (2019) Brinth et al Danish Medical Journal (Ugeskriftet.dk)

    Subsets would only be relevent if they could be identified pre exercise. It never ceases to amaze me that If the starting point is to " first...
    Post by: Amw66, Jun 10, 2019 in forum: General ME/CFS news
  15. Amw66
    Post

    Machine Learning-assisted Research on ME/CFS

    If melatonin is being prioritised as an antioxidant would yhis knock on to body clock dysregulation and sleep isdues?
    Post by: Amw66, Jun 10, 2019 in forum: General ME/CFS news
  16. Amw66
    Post

    Machine Learning-assisted Research on ME/CFS

    Great news @mariovitali
    Post by: Amw66, Jun 10, 2019 in forum: General ME/CFS news
  17. Amw66
    Post

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is this normal practice. If not, then it raises more questions re BMJ.
    Post by: Amw66, Jun 9, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Amw66
    Post

    Updates from the UK ME/CFS Biobank / CureME team

    Brilliant - thank you @mariovitali
    Post by: Amw66, Jun 7, 2019 in forum: ME/CFS research news
  19. Amw66
    Post

    Scottish ME Action update their manifesto. Call for commitment of £1m per year by the CSO for biomedical research :-) amongst other things

    Please have more " faults" !
    Post by: Amw66, Jun 7, 2019 in forum: Advocacy Projects and Campaigns
  20. Amw66
    Post

    Bile Acids and the Gut Microbiome, 2015, Ridlon et al

    Tagging @mariovitali
    Post by: Amw66, Jun 6, 2019 in forum: Other health news and research
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