It is weird that NICE is supposed to be so evidence-driven, yet then recommend treatments they openly acknowledge are unsupported by evidence, but...
Presumably advice only has to adopt the status of being advice at the time it is being administered, and I suppose at the time it is being...
I never said it was. I said one side of the equation is that resting too much has the potential for harm in any person, nothing to do with ME. The...
So what sort of evidence are we talking about? What would be the terminology? Empirical evidence? Presumably more than anecdotal evidence, because...
Excellent :)
Agreed, but my point was that I think the authors fully appreciate this, and were making their statement almost as an oblique challenge to any...
As an engineer I sometimes find it useful to consider extremes. Imagine pwME across a full spectrum of severities, from almost healthy, to the...
I've commented about this a few times in the past couple of years. If the only kind of worsening considered is when things are bad enough to be...
But it's far from dead, else we would not still be in this absurd mess. The BPS horse is still thrashing around spreading it's muck everywhere. (I...
Thanks @Trish for bringing this thread back into focus, re NICE and evidence based (or lack of) recommendations. Many of the bits in your NICE...
Is this it? https://www.sciencedaily.com/releases/2016/06/160623184238.htm https://me-pedia.org/wiki/Fred_Friedberg
Yes, @Jonathan Edwards only really noted it as an example, but because it is an easy one to discuss, we have got a bit hung up on it.
Yes, I've been pondering this. But I think a study would get more complicated even than that. My wife's symptoms vary significantly over quite...
Yes, capturing factual data from a large number of people, as untainted as possible by beliefs (likely sincerely held) about relationships between...
@Adrian: Do you know why the forum does not fully honour the BB Code 'code' tag? As per @wigglethemouse's link ... [ATTACH] ... it does preserve...
I tried exactly the same thing using 'code' and courier font, but the 'code' seems to override the font, and 'code' does not automatically give...
For people with hypothyroidism as well as ME, it would be good to know if being allowed to take a thyroxine dose that pushes FT4 a touch above the...
I think the key is that @Theresa said achievable goals. ETA: But of course it depends very much on who is presuming to set the goals. I was...
I used to be a big fan of the James Herriot vet stories, and I seem to remember him doing this with one of his patients, when everything else he...
That would fit with my wife's experience, who was diagnosed with ME 12 years or so ago. As I've said a few posts back, I see it as a form of...
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