An awful lot of medical professionals, in their 'professional judgement', still believe ME is not a real illness, so is indeed very often...
I think my wife finds finds that helpful to a degree, but not in any regimented way; she is mild/moderate - not sure if that is relevant. As far...
No, I don't see @Jonathan Edwards is saying that at all! Suggesting running a trial to assess the truth about a hypothesis is not the same as...
I fully agree, that's fine. In truth PACE would have been fine if it had been sound science, and had honestly reported objective results; everyone...
An aspect that maybe should also be considered, is the supportive care needed during hospital visits (emergency or routine), for conditions other...
Event-driven rather than time-scheduled.
Yes, that works for me.
Do we know what the inventory comprises, in order to assess what might be worth asking for? Or is it a catch-22 in that can only know once you...
@ahimsa, I don't have ME, my wife does. I was once what I call the innocently uninformed, who I believe are the people you want to draw in. I...
Whatever you thought you knew about ME ... ... you are probably WRONG! People with ME just get very tired, like everyone else ... ... wrong! Even...
Ah ha! I got it wrong, thinking it down to the fact that people called John often get nicknamed Jack, though I've no idea why.
Is it possible this blocking of DNA replication might also be happening during certain phases of the ME symptoms fluctuation? Just wondered...
I find the "anything" very hard to accept, though would readily accept that many things could be physical, but it is a crucial distinction....
If this is true then of course it would be good to establish. But then how do you go about clarifying that the neural inhibitory signals are not...
A question @Jonathan Edwards please. When you have flu, am I right in thinking that much of the fatigue experience is because the body's defences...
Is this saying that, if correct, the energy conversion and transport mechanisms could all be intact and OK, but that regulatory control of them...
As they say up North "there's nowt so queer as folk". There will always be some.
And maybe weakens future arguments against accessing more data.
That, of all observations, truly highlights the nonsense of ME being also labelled CFS. Because when I think about it that also fits with what I...
The astonishing thing is that he needs telling. Seems to be part of the job spec for quite a few of these journal editors.
Separate names with a comma.
