Anything from the MEA on this? There should be someone official explaining to the producers how harmful this is.
Thanks for the replies. Your work on all this looks important. Are you planning to publish anything soon about your plans for a package of...
You could also link them to this thread.
In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.
Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot
There have been some newspaper articles about bad treatment in hospitals. Also suggest they contact Dr Charles Shepherd and Dr Nigel Speight at...
@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?
@sarahtyson, in the hope that you are continuing to read and take notice of comments on this thread, I would like to draw the attention of your...
I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three aspects,...
That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who can run,...
Thanks, so the chair says 'a number of comments in the chat saying they were finding wearables 'incredibly unreliable, not recordiing accurately...
That was Sarah Tyson as part of her talk commenting about how unreliable some individuals find wearables, presumably from a few people she's...
Moderator note Please confine comments about any named individual to their actions in their professional capacity. A reminder of Rule 2:
Well that was useful (not) I tried to open one of the documents and got an access denied response.
By email from the workshop organiser Monica Bolton: Dear attendee, Many thanks for attending the Clinical Trial Design in People with ME/CFS...
Indeed, not just poles apart, planets apart. I'm not sure what planet Garner is on.
I've been reading Jeanette Burmeister's analysis, not having managed to find the time to do any analysis myself. Huge thanks to Jeanette for all...
Not necessarily. Lots of retired people use their time in retirement to take up voluntary activities related to their profession.For example, Paul...
I am not sure what it's rignt to say about this. It seems to me it's very likely that an early retirement may be on personal grounds about which...
If all the patient organisations, organisations like NIH, and the doctors whose advice they promote would stop suggesting EDS, MCAS, even neck...
Separate names with a comma.
