It seems pointless to do such detailed cognitive testing but to rely on self reports for sleep quality.
This sort of ignorance is one reason why I don't like ME/CFS being described as a disability. Better, I think, to describe it as a disabling...
I agree there's cause for concern. Suggesting private treatment has something useful to offer for kids with Long Covid is wrong. Nobody knows...
Thanks Joan. Very good reply.
How bizarre. Can you make any more of what the email said public?
The diagnostic criteria require post exertional malaise, not post exertional fatigue. Malaise means feeling ill, not feeling fatigued. I think the...
Coming into this discussion late, I may be saying something already said. If a charity is fundraising for research into a disease, they want to...
I certainly agree that if a clinic does anything useful that affects the person's health in a positive way, it is educating them about PEM, and I...
Discussion on this thread: https://www.s4me.info/threads/concerns-about-the-me-associations-prevalence-figures-for-me-long-covid.38250/#post-528502
I don't think recording the dates and severity of episodes of PEM would count as a PROM of the sort we are used to where questionnaires are filled...
Getting back to the topic of this thread, has anyone had their two weeks later invitation to fill in the activities questionnaire again? I haven't...
Oops, thanks, I'll add the link.
Substack article by Christine Pagel Link to Substack post Guest post: A terrible academic paper has fueled renewed anti-vax journalism - it must...
Not a good advertisement for rehab. They should have been able to work out whether the ones who had rehab were improved or worse after rehab, and...
Thank you Joan.
The discussion is fine, much like here.
Some of us in our 70's have fitbits and smartphones too. Though I confess I probably wouldn't if I didn't have my daughter in her 40's living...
For the record, here's what it says on the website: https://www.gold.ac.uk/careers/work-placements-and-internships/goldsmiths-internships/grip/...
I expect Paul Garner will be delighted.
Oh dear. This is dreadful. It would indeed be interesting to know who is behind it. Given some people like Parker and Landmark seek to legitamise...
Separate names with a comma.
