No, we need other ways of taking that into account. There are quick tests that can show cognitive fatigue, I think, which could be useful eg how...
Someone hasn't done their research.
I have set up this thread specifically to look at the way the questions are worded and whether they adequately cover the specific problems of...
Health apps I'm aware of all offer a cholce of android or apple. Don't most smartphones use one of other of these?
Yes. I really don't understand why the research team on this project don't understand that. Or choose not to understand it. I found Sarah...
A pity it's only available to delegates.
The PACE trial used wearables 20 years ago. They used step monitors for a week at the start and were supposed to use them again at the end, until...
I generally prefer not to donate directly to ME research, but to do it through a charity which has a vetting system to decide which research is...
I watched Caroline Kingdon who talked about her experience of visiting people at home who are participating in the ME Biobank. She was excellent...
I have watched the first 2 talks. Sarah Tyson's section on her team's development of PROMs she said she expects the 3 tested so far on symptoms,...
I have signed up to attend. If I manage to work the technology, I intend to watch and listen to some of it, but not try to take notes or ask questions
Crossposted with Hutan. Huge sympathy to those with awful ongoing symptoms. For those dreading it, a bit of hope is that it's not so bad for...
I think we need to be careful in our criticisms of use of feedback, because we don't know what changes Sarah Tyson's team are making to their...
Thread here: https://www.s4me.info/threads/european-me-coalition-me-cfs-pledge-for-the-2024-european-elections.38784/
Lovely to hear from you Ian. Best wishes to your mother. Well done with the fundraiser.
And attribute that absolutely zero abuse to the disclaimer/warning? Seriously, of course no online seminar that invites audience participation...
Some posts have been moved to: Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty insulting...
They surely will have seen our letters and are free to read this thread.
Every pwME's efforts at pacing is a research exercise carried out by the pwME as we navigate every day's activity and rest. All I'm suggesting...
Separate names with a comma.
