I think MEPedia is fine for historical information, but all the sciencey bits should be removed if no one is updating them.
I think I would have found it very helpful when I was newly learning to cope with symptoms and crashes and still working part time. It might have...
People with other chronic conditions such as asthma and diabetes are self monitoring and recording data on apps which help both with the patient...
Crossposted with Adrian. I think Adrian's idea is worth exploring. It wouldn't necessarily produce a long readout, rather, if I understand it...
The items in the S4ME Science library are getting out of date as we haven't had any volunteers to update it for several years. So maybe not the...
You've lost me. Can you explain? What is Sb? Are you suggesting these quack therapies are useful or what?
Interesting. Mine is quite different, headache, nausea, dizziness, fainting, inablity to eat, plus all the usual symptoms ramped up etc.
Fatigue is what I felt when well after a long hike, dancing all night or being up several times a night feeding a baby or caring for a sick child....
I think 2 weeks after I filled it in. Not sure now you ask.
I beg to differ. there are real risks that partipants will feel inadequate because they can't figure out which option applies, that they will be...
Since there is no questionnaire we've seen so far that distinguishes whether people with LC experience PEM, as some do and some don't, this seems...
The Partipant information sheet pdf is dated 13th October 2023, so it's possible I read it when we did the first questionnaire. If so I've...
Has anyone had their email inviting them to have a second go at the activity quesionnaire that we did the first version of 2 weeks ago? I've...
Many thanks to John and @Catherine Ashenfelter for adding The Grace Charity for M.E. to the list of organisations supporting this campaign.
That their GP, primary care practitioner will have misdiagnosed them with depression, anxiety, 'we all get a few aches and pains, there's nothing...
Fantastic. Welcome to another 6 months of bashing your head against the BPS wall, @dave30th.
Thank you for continuing the conversation constructively. I'm sorry if my reaction seemed dismissive. Give him time. It's possible, especially if...
Thanks, @Braganca. I hope you're right. The problem I see with moving on from the problems with the Walitt Nath study's conclusions is that they...
Crossposted with Ravi's latest post. Are people 'harping on' about the intramural study? I'm a bit out of touch with what's happening. If so,...
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