Given the huge difficulty we've had in getting the various medical bodies (Lancet, Psych Med, GMC, BMJ, MRC, ethics committees etc. etc. etc.) to...
Screening starting for ME/CFS patients and controls Now that the IRB protocols have been approved, the recruitment and screening of ME/CFS...
The Yellow Card scheme has a contact form for asking questions, if anyone wants to take this on: https://yellowcard.mhra.gov.uk/contact-us/
Huge thanks to the MPs who signed this letter. Very pleased to see that @Action for M.E. have signed it too.
If they don't serve the interests of patients and science then their existence is pointless. And apparently, their existence is pointless.
Is there no institution who should give a monkey's that they've violated the Declaration of Helsinki? What's the point of having such a thing if...
Oops - yes, you're right - it's taken me about a dozen re-readings to get it, though... :)
But there are a couple of what look like stray words in there (probably left over from an edit) that mean that the sentence can't be parsed: The...
How can we get people to look at this in relation to ME/CFS?
I agree - it looks like we're stuck until the science moves forward.
I think we've had ME/CFS for so long that we've forgotten how weird it is to have a two-component name. I don't think another one would do us any...
Do we know that that's what it is?
Can you think of a way to express it that isn't ambiguous in terms of it being a patient's choice?
Patients who objected to SEID objected specifically to the 'exertion intolerance' bit, IIRC, because they thought it would make us vulnerable to...
Thanks for trying, anyway. This whole PACE thing seems to be about people in positions of influence screwing up, doing enormous harm to patients...
Earlier in the transcript, it says: Richard Horton: Well we have been deluged with dozens of letters raising serious objections to the conduct...
Just revisiting the transcript of the Australian Broadcast Corporation show in which Richard Horton was talking about PACE and patients' reactions...
Just makes me realise that if anyone ever unlocks this disease, I'm not going to understand what they're talking about... :confused:
I took it as a reference to 'Waiting for Godot', the Samuel Beckett play.
Welcome to the forum, @rvallee, and thanks very much for posting this very interesting interview. I'm surprised not to have heard more about Dr...
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