And that's the key distinction. One can argue that the state of having any disease or injury will have a psychological aspect to it but there's a...
The reason I'm asking is that the $100k fundraiser is going much faster than this one and I wonder if the comparison is raising in people's minds...
Sorry to hear about your surgery - I hope you have a swift recovery. :) I think a scheduled convo here could be really useful.
So is a broken leg partly psychological?
We're living in a world (thanks for nothing, PACE) in which the default assumption for many people is that we have an entirely psychological...
[MEDIA] @JenB, would it be worth specifying what happens to the donations if the full amount isn't raised? The target (as you know) is £55k and...
My impression is that people aren't understanding the implications of the language that they're using, because it doesn't reflect the views I've...
Sorry, meant to tag you in the above message, @JenB. :)
I wonder if your doing a live Q&A here would be a good opportunity not only for you to answer questions but for you to ask forum members here...
I think the difference is that something specific is more appealing to give to than something general. The UK Biobank suffers from this, I think....
I mean that I wonder if #MEAction looks like a general support structure that 'does nothing' ( :eek: I know! I know!) until a campaign comes along...
I wonder if it's because #MEAction somehow looks like infrastructure, and people focus on individual campaigns? Would it help to be explicit...
I've just realised that the title of the thread doesn't make it clear that there's a fundraising drive going on for this (it's always hard to...
I've also seen that language before and I wonder if the people using it realise that by saying that ME is 'primarily biological, not...
I think the issue is that it didn't change clinical practice. NICE took the PACE authors' positive interpretation of the trial results at face...
The agenda has been posted: https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2018-06-20/index.html And it includes sessions for public...
I just came across something in this week's New Scientist (a UK science mag) about a Stanford professor named Mark Jacobson who last year tried to...
I think there's a distinction between realising that AfME could have a big impact if it spoke out against PACE (on the one hand) and realising...
I agree - they're in a uniquely strong position to have a huge impact. Taking that step would require taking the time to understand the now well...
Stellar job again, @Emsho! Fantastic video clip of you in that TV thing (hit 'play' in the above Twitter thing, folks, and you can see the 30-sec...
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