@Jonathan Edwards - I've set this YouTube video to start at the point where Dr Komaroff starts talking about the study I mentioned earlier. [MEDIA]
I keep forgetting you have to click 'Latest' to see the latest tweets... [MEDIA] Anyway, at least people have shown up! That's a shame - I...
I was hoping that people would tweet within the bounds of keeping those secrets! It's just nice to feel part of things that are important to us...
Neuronal antibodies? I didn't even know they were a thing.
People who want a name could also print off 'my' badge onto white paper and cut it out so that it has a band of white underneath it, where they...
Here's a search using the #BRMEC8 tag: https://twitter.com/search?q=#BRMEC8&src=typd A few messages up from the colloquium already (although...
Day One today. I wonder if anyone will be tweeting from it? The schedule is on this page but I can't provide a direct link to where you have to...
People arriving: [MEDIA]
Congratulations, Robert - great job packing a lot into a short letter. :thumbup:
Sorry if people have already said this, but what is the next step in this process?
Thinking more about a badge... Not only would it help those S4ME folks to meet up who want to, but people wearing it would be a good advert for...
I don't think so, Andy - I don't see any biological measures in there. Komaroff was comparing levels of three particular biological things.
IIRC it was a fairly large (hundreds of patients?) study that he'd been involved with quite a few years ago. He had a slide in his talk...
@Jonathan Edwards - in Dr Komaroff's webinar this week, he referred to an old study of his showing big differences on three tests between PWME and...
Another excellent show, @Gary Burgess! I've never heard Jane Colby speak and I was very impressed. A wonderful person to have on the side of...
Semi-seriously, you could all have a badge! Just needs someone to design something and you could all just print it off on paper and pin it to...
@Graham - it's also likely that those most likely to join a self-help group are those most in need of help - i.e. those at the relatively severe...
From the ME Association: Can you help? We need short video clips for a Sky One series ‘What’s up TV’ that will campaign for M.E. | 25 May 2018...
I think it would be better to have ME as the NICE poster child of how a disease that isn't yet understood biomedically shouldn't be treated as...
Do you want to add it to the calendar, @Andy?
Separate names with a comma.
