$52,412, 80% raised, 4 days left. https://crowdfund.berkeley.edu/project/37217
All study documents, including the questionnaire, that we are currently able to make available can be found here,...
The preprint links to a copy of the questionnaire and specifies the particular questions which appear in the image, so no, I wouldn't have thought...
No, we don't.
Already a world-class discovery at ME/CFS Lines? "In 2018, Lifelines included data and biomaterials from 2,500 participants with ME/CFS; since...
They have been in contact with us, and we are planning to talk with them further about whether and how we can work together in the future....
Good, that is something our team should have done. As a research team there are restrictions on whom we can contact and how; obviously it will...
Anybody is welcome to submit any comments direct to the team via info@decodeme.org.uk - please help us by using "Comments on the questionnaire...
A week has gone by and no response from either email address.
Introduction: Numerous psychological factors are believed to play a pivotal role in the development and maintenance of persistent somatic symptoms...
Background Chronic fatigue syndrome (CFS) is characterised by extreme fatigue, as well as physical and cognitive symptoms. CFS is thrice as...
First biomedical research on ME/CFS starts "Soon 10 projects, within 2 consortia, will start with biomedical research into the disease ME/CFS....
Trial By Error: Dutch Agency to Announce ME/CFS Research Awards After Committee Resignation of Key Patient Advocate "The funding to be announced...
Not yet, we are waiting for the next 'landmark' figure that we hope will occur 'soon'.
Abstract Background: People with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) daily experience core symptoms of post-exertional...
Abstract For the past 3 years, our daily lives have been largely dictated by the coronavirus disease 2019 (COVID-19) pandemic. In many people,...
"20,000 #pwME have completed the #DecodeME questionnaire, providing us with a wealth of information about lived experience of #ME/CFS to...
Published papers thread for w/c 17th April Facebook:...
Thread on study here, The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.
News in Brief posts for w/c 17th April Facebook:...
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