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Page 18 of 27
  1. Andy
    Post

    Crowdfunding: Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Spring 2023

    $45,051, 69% raised, 7 days left. https://crowdfund.berkeley.edu/project/37217
    Post by: Andy, Apr 23, 2023 in forum: Fundraising
  2. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    For those of you (or your kids or grandkids) on TikTok there is now a DecodeME account, https://www.tiktok.com/@decodemeproject, with our first...
    Post by: Andy, Apr 21, 2023 in forum: Recruitment into current ME/CFS research studies
  3. Andy
    Thread

    Close your eyes and see – stroke sequelae versus functional neurological disorder in a physician 2023 Weil et al

    Abstract The first author was a left-handed, 51-year-old nephrologist who experienced a neurologic event. She underwent neurosurgery complicated...
    Thread by: Andy, Apr 21, 2023, 11 replies, in forum: Other psychosomatic news and research
  4. Andy
    Post

    ‘Electrifying’ book about women with disabilities sells for six figures - Frances Ryan book

    Frances Ryan on Twitter. "Almost too excited to say that I wrote the cover-story for May’s @BritishVogue - a profile of the wonderful...
    Post by: Andy, Apr 20, 2023 in forum: General disability topics and advocacy
  5. Andy
    Thread

    Exercise Intolerance Associated with Impaired Oxygen Extraction in Patients with Long COVID 2023 Norweg et al

    Highlights Ours is one of the first CPET studies to highlight reduced O2 pulse peak % predicted (impaired oxygen extraction) as a mechanism of...
    Thread by: Andy, Apr 20, 2023, 7 replies, in forum: Long Covid research
  6. Andy
    Post

    UK: National Institute for Health and Care Research: New guidance for easier payment of public contributors to research

    Payment for public involvement in health and care research: a guide for organisations on employment status and tax Executive summary Background...
    Post by: Andy, Apr 20, 2023 in forum: General disability topics and advocacy
  7. Andy
    Post

    Crowdfunding: Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Spring 2023

    $34,466, 53%, 11 days left. https://crowdfund.berkeley.edu/project/37217
    Post by: Andy, Apr 19, 2023 in forum: Fundraising
  8. Andy
    Post

    Metabolic independence drives gut microbial colonization and resilience in health and disease 2023 Watson et al

    Author on Twitter
    Post by: Andy, Apr 19, 2023 in forum: Other health news and research
  9. Andy
    Thread

    Metabolic independence drives gut microbial colonization and resilience in health and disease 2023 Watson et al

    Background Changes in microbial community composition as a function of human health and disease states have sparked remarkable interest in the...
    Thread by: Andy, Apr 19, 2023, 1 replies, in forum: Other health news and research
  10. Andy
    Post

    Effects of sleep disturbance on dyspnoea and impaired lung function following hospital admission due to COVID-19 in the UK: 2023 authors incl. Chalder

    Sleep disturbances, dyspnoea, and anxiety in long COVID This study is an important addition to the literature, but a few potential limitations...
    Post by: Andy, Apr 19, 2023 in forum: Long Covid research
  11. Andy
    Post

    Elsevier journals: publication fees and access to paywalled articles

    "The National Institute for Health and Care Research (NIHR) is the world’s first health research funder to publish comprehensive accounts of its...
    Post by: Andy, Apr 18, 2023 in forum: Research methodology news and research
  12. Andy
    Thread

    The biopsychosocial model: Its use and abuse 2023 Roberts

    Abstract The biopsychosocial model (BPSM) is increasingly influential in medical research and practice. Several philosophers and scholars of...
    Thread by: Andy, Apr 18, 2023, 13 replies, in forum: Other psychosomatic news and research
  13. Andy
    Thread

    Using systems theory to improve intervention outcomes 2023 Jason and Bobak

    This article explores the potential of using systems methods for better conceptualizing the unexpected and complex sets of hurdles and...
    Thread by: Andy, Apr 18, 2023, 0 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Andy
    Post

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    Trial By Error: Professors Crawley, Chalder & Colleagues Investigate Pediatric Long Covid in Yet Another Study with a Stupid Acronym "No human...
    Post by: Andy, Apr 17, 2023 in forum: Long Covid news
  15. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    We are currently seeing around 50% of participants who complete the questionnaire being invited to donate DNA. We had, from memory, around 27k...
    Post by: Andy, Apr 17, 2023 in forum: Recruitment into current ME/CFS research studies
  16. Andy
    Post

    Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome 2016 Prendergrast, Jason et al

    "Housebound status The DSQ includes a measure that asks participants to describe their fatigue/energy related illness.25 Participants that...
    Post by: Andy, Apr 17, 2023 in forum: ME/CFS research
  17. Andy
    Thread

    Housebound versus nonhousebound patients with myalgic encephalomyelitis and chronic fatigue syndrome 2016 Prendergrast, Jason et al

    Objectives The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to...
    Thread by: Andy, Apr 17, 2023, 5 replies, in forum: ME/CFS research
  18. Andy
    Post

    Exercise as a Moderator of Persistent Neuroendocrine Symptoms of COVID-19, 2023, Rebello, Candida et al

    I hypothesize that the authors are wrong.
    Post by: Andy, Apr 17, 2023 in forum: Long Covid research
  19. Andy
    Post

    Crowdfunding: Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Spring 2023

    $25,409, 39%, 13 days left. https://crowdfund.berkeley.edu/project/37217
    Post by: Andy, Apr 17, 2023 in forum: Fundraising
  20. Andy
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    From the FAQ, "Until the first GWAS study for an illness is done, it is just not possible to know how meaningful its findings will be. However,...
    Post by: Andy, Apr 17, 2023 in forum: Recruitment into current ME/CFS research studies
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