Thank you @MErmaid and @Trish Great information. It's so hard - determining whether to push a little or not to push at all and where is the...
Our 8 year old is still missing a lot of school between muscle spasticity in her calves and stomach, her headaches, and her low energy and the...
I believe each study has to be analyzed on it's own. For example, the early research on CoQ10 did not have the benefit of the knowledge about the...
Thanks @Alvin . I completely understand. I'll do the research on K2. I really appreciate the heads up.
Thank you @Alvin . I'll ask her doctor about it. Since I passed Factor V Leiden heterozygous onto this little one, her doctor might frown on...
Thanks @Mij . Will do
Thanks Arnie! Great information. I don't tend to worry about things. I take in information, evaluate and then try to figure out the course....
Great question! I just went back to her last blood test. She wasn't tested for ferritin. I then went back through all her labs for the last year...
Thank you @Valentijn . Her folate was recently tested at the same time and was listed as normal at 22.0 ng/ml with the range being >7.1. You are...
I'm looking for suggestions on how to help our youngest daughter who is now 8 and suffering from crushing fatigue. Our teen daughter and I didn't...
Thank you @Jonathan Edwards . I agree that the original trial sited at the beginning of the thread is very thin and has recommendations that are...
I have Factor V Leiden (FVL) heterozygous mutations (rs6025) plus the FV R2 heterozygous mutation (rs180059). FVL heterozygous by itself...
Thank you @MErmaid for starting this interesting thread. And thank you to everyone who provided insight. Some topics provide a foundation that...
It's something we definitely need to explore further. With the OCD issues and the fear coming into play, I've been reading about the four steps...
Two of the five of us in our family with MitoD have what might be described as ARFID. "Avoidant/Restrictive Food Intake Disorder (ARFID), also...
Besides the normal myoclonic jerks that just appear out of nowhere, I also get jerks that happen unexpectedly when I move. For example, I can...
I realize some people in the CFS/ME community look down on the Jackson Laboratory. Despite the fact that JAX is a late comer and there are some...
The woman sticking up for the man with Parkinson's is that friend/partner that we all wish we had. OK, maybe not the exact language, but the idea...
Yes, I have this too. If I try to accomplish too much during a day, it will come on. Or if I go into a crash. I won't even notice I'm doing it...
Thank you everyone for responding. I'm going to let the poll run another week before I provide a few observations and related studies. It's a...
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