He also said that in his opinion it is dangerous for PWME to donate blood.
I think this is the part that stood out most
The sad truth appears to be that large portions of research done under a mental health banner, ostensibly to help patients, are junk. Patients are...
The denial is not just unfair but also prevents learning from failure. Someone who doesn't admit that the treatment went wrong may repeat the same...
I would like to add that we do not need to have clarity on the illness to justify that a serious and credible effort is made to help us. How...
I'm so sorry to hear this.
This is a nontrivial health problem even if it's not chronic fatigue syndrome.
I'm so sorry :(.
We can also abandon the term "neuroimmune" I think. The immune system may well be doing something in the brain but we don't know what. There is no...
With this and the relevant ME Action survey as well as a few discussions here and there it feels like the larger community has assessed the...
I'm not so sure. People make mistakes when they are fatigued. I know that I'm fatigued but I don't always realize that I'm too fatigued to be...
That is exactly what I suspect happens often in ME/CFS and perhaps other conditions. People get used to feeling a certain way, forget what feeling...
Unless I'm misunderstanding something, illness consequences is conceptually very similar to handicap. Two terms for similar things....
There are graphs of worldwide research funding here https://www.meassociation.org.uk/wp-content/uploads/mecfs-research-funding-report-2016.pdf
I am interested in understanding how people who believe in psychogenic illness think. This is an interesting study. It appears to show that a...
@Jonathan Edwards I had this again last night, first with a sensation of being pullled towards the feet end of the bed and up by some invisible...
Regarding the prevalence of severity. Consider that the patients with characteristics that make it easier to be diagnosed are likely to be...
I googled "causes of school refusal" and checked Wikipedia. These bring up long lists of various causes, all of them psychosocial or psychiatric....
I suspect an important reason for young people going undiagnosed is that they seek help but are given harmful advice, most likely in the form of a...
Maybe they have repeated negative encounters with healthcare professionals and eventually just give up. A negative encounter can just be a doctor...
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