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Page 15 of 42
  1. Hoopoe
    Post

    Research news from Bhupesh Prusty

    He also said that in his opinion it is dangerous for PWME to donate blood.
    Post by: Hoopoe, Feb 1, 2020 in forum: ME/CFS research news
  2. Hoopoe
    Post

    A Machine Learning Approach to the Differentiation of Functional Magnetic Resonance Imaging Data of CFS. Baraniuk et al. 2020

    I think this is the part that stood out most
    Post by: Hoopoe, Jan 30, 2020 in forum: ME/CFS research
  3. Hoopoe
    Post

    Bias due to a lack of blinding: a discussion

    The sad truth appears to be that large portions of research done under a mental health banner, ostensibly to help patients, are junk. Patients are...
    Post by: Hoopoe, Jan 30, 2020 in forum: Trial design including bias, placebo effect
  4. Hoopoe
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    The denial is not just unfair but also prevents learning from failure. Someone who doesn't admit that the treatment went wrong may repeat the same...
    Post by: Hoopoe, Jan 30, 2020 in forum: ME/CFS research news
  5. Hoopoe
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    I would like to add that we do not need to have clarity on the illness to justify that a serious and credible effort is made to help us. How...
    Post by: Hoopoe, Jan 30, 2020 in forum: General ME/CFS news
  6. Hoopoe
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I'm so sorry to hear this.
    Post by: Hoopoe, Jan 30, 2020 in forum: ME/CFS research news
  7. Hoopoe
    Post

    "The way of the tired person":life rules for the perpetually exhausted. Jo Walker, Jan 27 2020, The Guardian

    This is a nontrivial health problem even if it's not chronic fatigue syndrome.
    Post by: Hoopoe, Jan 29, 2020 in forum: General ME/CFS news
  8. Hoopoe
    Post

    Brexit is happening: what does it mean for science?

    I'm so sorry :(.
    Post by: Hoopoe, Jan 29, 2020 in forum: Other health news and research
  9. Hoopoe
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    We can also abandon the term "neuroimmune" I think. The immune system may well be doing something in the brain but we don't know what. There is no...
    Post by: Hoopoe, Jan 27, 2020 in forum: General ME/CFS news
  10. Hoopoe
    Post

    Of the ICC-ME authors who have subsequently published in the field (based on PubMed), all have subsequently used ME/CFS and/or CFS

    With this and the relevant ME Action survey as well as a few discussions here and there it feels like the larger community has assessed the...
    Post by: Hoopoe, Jan 27, 2020 in forum: General ME/CFS news
  11. Hoopoe
    Post

    University of Victoria (Canada) article on development of EEG wearable

    I'm not so sure. People make mistakes when they are fatigued. I know that I'm fatigued but I don't always realize that I'm too fatigued to be...
    Post by: Hoopoe, Jan 26, 2020 in forum: Other health news and research
  12. Hoopoe
    Post

    University of Victoria (Canada) article on development of EEG wearable

    That is exactly what I suspect happens often in ME/CFS and perhaps other conditions. People get used to feeling a certain way, forget what feeling...
    Post by: Hoopoe, Jan 26, 2020 in forum: Other health news and research
  13. Hoopoe
    Post

    From illness perceptions to illness reality? Perceived consequences and emotional representations ... in p/with vertigo & dizziness, 2020, Wolf et al

    Unless I'm misunderstanding something, illness consequences is conceptually very similar to handicap. Two terms for similar things....
    Post by: Hoopoe, Jan 25, 2020 in forum: Other psychosomatic news and research
  14. Hoopoe
    Post

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    There are graphs of worldwide research funding here https://www.meassociation.org.uk/wp-content/uploads/mecfs-research-funding-report-2016.pdf
    Post by: Hoopoe, Jan 25, 2020 in forum: Advocacy Projects and Campaigns
  15. Hoopoe
    Post

    Psychological therapists' judgements of pain and treatment decisions: The impact of ‘medically unexplained symptoms’, 2020, Jones & Williams

    I am interested in understanding how people who believe in psychogenic illness think. This is an interesting study. It appears to show that a...
    Post by: Hoopoe, Jan 25, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Hoopoe
    Post

    Waking up in the night and hearing a brain-generated sound

    @Jonathan Edwards I had this again last night, first with a sensation of being pullled towards the feet end of the bed and up by some invisible...
    Post by: Hoopoe, Jan 25, 2020 in forum: Neurological/cognitive/vision
  17. Hoopoe
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Regarding the prevalence of severity. Consider that the patients with characteristics that make it easier to be diagnosed are likely to be...
    Post by: Hoopoe, Jan 24, 2020 in forum: ME/CFS research news
  18. Hoopoe
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I googled "causes of school refusal" and checked Wikipedia. These bring up long lists of various causes, all of them psychosocial or psychiatric....
    Post by: Hoopoe, Jan 24, 2020 in forum: ME/CFS research news
  19. Hoopoe
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    I suspect an important reason for young people going undiagnosed is that they seek help but are given harmful advice, most likely in the form of a...
    Post by: Hoopoe, Jan 24, 2020 in forum: ME/CFS research news
  20. Hoopoe
    Post

    The Prevalence of Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a Community-Based Sample (2020) Jason et al.

    Maybe they have repeated negative encounters with healthcare professionals and eventually just give up. A negative encounter can just be a doctor...
    Post by: Hoopoe, Jan 24, 2020 in forum: ME/CFS research news
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