Judging by the response you've had, they will probably consider it a normal setback. In their narrative, this kind of thing is normal and not...
These two items on the questionnaire are the closest to PEM: "Pain increasing the day after you are active" and "Fatigue increasing the day after...
Exactly. Their aim is to produce a "generic functional disorder questionnaire suitable for patients with a diagnosis of IBS, FMS, and CFS"....
It seems to be human nature to react to uncertainty about something by building a strong belief about the nature of this thing. The more uncertain...
These geniuses then put her into an abusive, unbearable and uncontrollable situation for three years. These psychiatrists are like a caricature...
Oh the irony. It sounds like these psychiatrists are victims of their false beliefs. Psychiatrists with false beliefs suffer from a very serious...
@Jonathan Edwards when is the NICE hearing? The Cochrane review being delayed might have something to do with NICE.
There is a problem of patients believing all sorts of ideas about their illness. Not because of a mental illness but because they don't realize...
It needs to take cost, time and effort into account. A cheap and simple intervention, like adding some magnesium and salt to your water bottle...
My health permanently worsened as result. I'm not the only one. The side effects were horrific and I thought I would not survive a year. Allegedly...
@dave30th this sounds like a worthwhile idea.
I think what is needed is to beat them at the media game. They have exposed themselves with the grossly misleading articles. It would be easy to...
@Jonathan Edwards can you leave a comment? Your last ones on Psychology Today were really good.
I regret ever making the foolish decision.
It is bizarre that in a situation where patients are slowly winning against profound injustice, the Guardian is happy to denigrate the very same...
It is frightening how care of children with poorly understod health problems is controlled by zealots that have constructed a complex belief...
They otherwise strike me as a publication that would side with patients and good science. Why not in this case, and is there anything that could...
My interpretation is that the connection is the remarkable chronicity of the condition, which often occurs with a sudden switch from good to poor...
I don't think fluctuations contradict the idea of a metabolic trap. As others have said, it's not all cells that are trapped, just some. The body...
The relapses are not from a state of normal health into a state of ill health. They are from a state of ill health into an even worse state, with...
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