This thread is for a list of sub-national Australian ME/CFS and Long Covid organisations. National organisations are listed in ME/CFS and Long...
Thanks very much @LarsSG. They have now been sent an email about the campaign.
Canadians, we are trying to work out what ME/CFS and Long covid organisations we should contact regarding the Cochrane Exercise Therapy Review...
I watched the Diane O'Leary presentation on the ethics around medical care for people with ME and LC. There was no mention of CFS, and not a whiff...
I watched the Amy Proal presentation on viral persistence - just over 30 mins. It was well presented and easy to follow. Nothing new for people...
It's possible that some of this has already happened, with the UK NIHR seeming to have stepped back a bit. I think I read somewhere, either...
@RedFox Check out this thread: Post mortem tissue donation and autopsies (Members only) There's a post there about the US NIH NeuroBioBank....
This is important, good on the MEA. It's a difficult thing to think about, especially given the relatively young upper age limit. Relevant...
Here's the cumulative graph of petition numbers over time. You can see that numbers are still climbing steadily. 10,000 is the top line on the y...
Thank you very much to RME Jönköping for signing the petition and supporting the campaign.
We have posted this update on the petition: PETITION UPDATE 22 Oct: The office of the Editor-in-Chief replies OCT 21, 2023 — In our letter of...
And more great news from Sweden, another organisation signing: RME Stockholm Thank you very much. With each organisation that signs I think of...
Some more excellent news from Sweden - two more organisations signing: RME Väst #MillionsMissing Sweden Thank you to the advocates (Mango...
It does sound as though you are right: What can we learn from results of the RoB 2 comparison study?
Very interesting, thanks Arnie Pye. It's sad to hear about the standard treatment for ME/CFS there in Valencia. But yes, at least this man's...
Spanish report
I get the sense that it is some organisations with connections to people on the IAG that are unwilling to support the campaign, perhaps because...
We have created a thread for discussions about if and how to report about claims of cures: Responsible ME/CFS journalism - how to report about...
Post moved from another thread “Your Blood is Black”: My ME/CFS Experience with HELP Apheresis in Germany On the question of whether a treatment...
Pretty impressive - looks like lots of govt involvement.
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