[ATTACH] Here's the chart of petition numbers. We are inching towards 10,000; momentum has slowed down a bit this last week, although there have...
The site seems to try to dodge commitment and controversy by mostly having a whole lot of people present a whole lot of opinions. Even the list...
I'm always keen to see good epidemiological studies of Long Covid/PCS. I haven't read very far, but I am already doubting that this is one....
Welcome to the forum @TinyBird10. I'm sorry that you are experiencing that; it sounds very frustrating. Most of us are not doctors and none of us...
It does look good @bobbler I couldn't help reading this in the context of Cochrane I don't feel listened to When you ask for people's input...
Yeah, retrospective self-report, with self-selected recruitment. Number of people who had not been infected is relatively small, and so they...
@Peter Trewhitt writes about the silence and secrecy of the past two years. Actually it mostly continues. A large chunk of the international...
It's a nice summary of events @dave30th, thank you. Also some great comments on the blog @Peter Trewhitt, @Snow Leopard.
Yes, I think this is a key point to use in advocacy. You can't have an organisation that publishes clinical guidance but does not have the...
EMA is European Medicines Authority The agenda looks really interesting and useful; looks like a practical focus on getting good trials done....
Thanks SNT. Sorry about that, I've changed the title thread.
The saga continues - more correspondence with Cochrane: S4ME: 2023 Open Letter to Cochrane - request for action on the ME/CFS Exercise Therapy Review
I think there's a lot to like about this study. It's worth clicking through to the fuller explanation, which is still just a summary. One thing...
Thanks SNT, it looks useful. There's a reader's survey asking for ideas for stories and resources. I mentioned the Cochrane issue (and the...
There is a paywall. I'm interested to see some quotes about those points you mention.
This, and even then the low quality rating is only for a small number of outcomes, almost all of which are short term outcomes. The evidence for...
I find this a bit horrifying - here is the reality of the BPS capture of Long Covid. People with persistent symptoms, with physical incapacity,...
A new thread has been created for the discussion of the content of Hilda Bastian's talkpage facility here: Cochrane - Exercise therapy review -...
Here is the reply I posted on Hilda's talk page. A couple of my posts are not appearing on that platform, so I'm going to record them in the...
From NICE https://www.nice.org.uk/guidance/ng206/evidence/g-nonpharmacological-management-of-mecfs-pdf-9265183028 page 384 This has the bit about...
Separate names with a comma.
