But reduced cerebral blood flow is surely something suggested by Campos-Costa thirty years ago and never verified?
I would be interested to know what was actually said but I find it hard to believe it was quite that. I imagine that Strauss was saying that he...
As indicated in my replies above. In the UK we just need a functioning medical care system, full stop. I realise that PWME have had a raw deal...
Michael Hanna is very knowledgeable about mitochondrial disease affecting muscle power. He is at the National Hospital Queen Square.
Yes one is a concept based on an idea of what causes the problem the other is a concept based on a problem needing a cause. Quite different...
As I understand it the symptoms are not similar. I think patients get into thinking that if two diseases include headache or shortness of breath...
I think it is interesting to see this sort of attempt to invoke trauma for a condition for which trauma as a cause is inherently very implausible....
On the face of it this looks like unhelpful perpetuation of exactly the thing she is complaining about. Let me try some answers: When did ME...
Discussion moved from the Long Covid in the media thread Has this Guardian article been posted? Alarm after EHRC says long Covid should not be...
Just because some people think it is a problem does not mean that it is. From a brief glance at that paper it just shows that estimates of...
The situation is certainly very complex and all sorts of confusions are possible. On the other hand in the 1990s I think quite a lot of...
No I am not. She mentioned a Facebook group and I commented. My other comments relate to other detailed issues. I think the conversation has...
Actually, for what it's worth, the NICE guidelines say that therapy should be done by a properly trained therapist - sorry Mrs Rothney, you don't...
I don't think Mike Murphy's view would be 'in the past', @lunarainbows. He was picked as a top mitochondrial disease expert by IiME and is...
Autogenic Training was invented in 1950 and there have been 1,300 papers on it since then - rather fewer in the last twenty years. There appear to...
A foolish consistency is the hobgoblin of little minds, adored by little statesmen and philosophers and divines. With consistency a great soul has...
Ye I think so. He attended one of the IiME meetings and Jo Cambridge and I had lunch with him and we discussed the symptom issue. He had heard all...
Actually for mitochondrial disease this is to the case as I understand it. Things are more complicated. But I am not sure how relevant all this is...
No doubt people with mitochondrial disease will report fatigue but as everyone on this list says, that is not really what ME symptoms are about....
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