Yes, and that is the right conclusion. It does not alter the different conclusion that those who are breathless, and have evidence of infection,...
I agree but why then do they not champion PWME? Remember that the EDS story was primarily popularised by Hans Knoop. Basically when it comes to...
The greatest danger of the NICE committee failing to reach a sensible conclusion came from downgrading evidence quality on the pretext of disease...
I agree that if you interested in an illness characterised by PEM then you should put that in your criteria. But every piece of medical research...
What is so distressing is that the Guardian, supposedly the champion of the underdog, is incapable of championing people with chronic illness...
If they had put the numerical data in the abstract rather than talking immunological gibberish I would have taken more note. I got as far in the...
To be honest I have never seen comparability across research studies as being of great importance. Good studies produce answers. Poor studies...
So who are 'they'? 'hEDS' is defined as EDS only involving joints without other systems involved. I know this because I wrote one of the first...
The point I want to make is that people like this are clearly suffering but the label hEDS is made up by doctors who don't understand what they...
https://www.theguardian.com/society/2022/feb/23/the-doctor-who-was-told-her-illness-was-all-in-her-head-and-is-transforming-the-treatment-of-her-ra...
Selection of cohorts is always a matter for the individual experiment or study. Journal referees may ask for certain criteria to be used but there...
Immunoinflammatory pathway activation is one of the most researched topics related to CFS [14, 16]. Immune activation markers in CFS include...
I just don't see this E12. I can't even think of an example of an unpleasant social media message right now. Maybe I just don't see them. What...
I really don't see the validity or relevance of that E12. We are dealing with a quite unusual group of charlatans who have preyed on the ME...
A clear case of a beam in one's own eye. Only 10% of patients are deluded enough to think they are still ill after a year. But 100% of...
I checked MEG on PubMed and found a systematic review from the last year. Basically it seems to say that nobody knows whether MEG is useful in...
The senior author has never found knowing nothing about a subject an obstacle to publication.
It seems to be in the public domain now;).
So this might be yet another intolerance, like exertion intolerance and light intolerance - CO2 intolerance! It is conceivable. I am a bit...
I sent them this: Dear Drs Flottorp, Brurberg, Knoop, Fink, Wyller and Garner, I was saddened to see the continued attempts to discredit NICE in...
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