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  1. Jonathan Edwards
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Those look like usual bits of dust and chipped plastic. An ' expert' who is prepared to agree that these look like micro-clotting is pretty hard...
    Post by: Jonathan Edwards, Jan 6, 2022 in forum: Blood (e.g. coagulation, cell stiffness)
  2. Jonathan Edwards
    Post

    Deaths from ME/CFS

    I think this is a difficult question, maybe worth some discussion. I am not sure we are in position to say someone has died from ME/CFS. Without...
    Post by: Jonathan Edwards, Jan 5, 2022 in forum: General ME/CFS news
  3. Jonathan Edwards
    Post

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    I see that West is a UCL psychologist who works on tobacco addiction. Presumably Cochrane have shown his treatment 'works'.
    Post by: Jonathan Edwards, Jan 5, 2022 in forum: Other health news and research
  4. Jonathan Edwards
    Post

    NICE and Cochrane sign collaborative agreement to deliver ‘living’ guideline recommendations

    We all rely on the Cochrane Tobacco Addiction Group's work. This has to be dog-whistling to someone. Why should anyone need a Tobacco Addiction...
    Post by: Jonathan Edwards, Jan 5, 2022 in forum: Other health news and research
  5. Jonathan Edwards
    Post

    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    And yes, @JemPD, one could mention the shedload of other errors that make the investigation meaningless even as a correlation.
    Post by: Jonathan Edwards, Jan 5, 2022 in forum: Recruitment into current ME/CFS research studies
  6. Jonathan Edwards
    Post

    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    If you want my ha'pennyworth as advice to this student: The main purpose of a PhD is to show that the candidate has learned what is bad...
    Post by: Jonathan Edwards, Jan 5, 2022 in forum: Recruitment into current ME/CFS research studies
  7. Jonathan Edwards
    Post

    Help finding article: Kowal. 1955. Emotions As a Cause of Cancer: 18th and 19th Century Contributions

    I have a web archive so far.
    Post by: Jonathan Edwards, Dec 31, 2021 in forum: Other psychosomatic news and research
  8. Jonathan Edwards
    Post

    Assessment of systemic joint laxity in the clinical context: Relevance and replicability of the Beighton score in chronic fatigue, 2021,Bernhoff et al

    The message seems to be that 'experts' don't agree much on what they think hyper mobility consists of. This should be no surprise to anyone.
    Post by: Jonathan Edwards, Dec 28, 2021 in forum: 'Conditions related to ME/CFS' news and research
  9. Jonathan Edwards
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Seem to be getting over it quickly. Not so much Covid as Jabvid - the feeble sort you get after everyone has been jabbed.
    Post by: Jonathan Edwards, Dec 27, 2021 in forum: ME/CFS research
  10. Jonathan Edwards
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Basically what CRG says above.
    Post by: Jonathan Edwards, Dec 26, 2021 in forum: ME/CFS research
  11. Jonathan Edwards
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Which is presumably what a positive tilt test is about. But as far as I can see the paper simply shows that people that have this positive test...
    Post by: Jonathan Edwards, Dec 26, 2021 in forum: ME/CFS research
  12. Jonathan Edwards
    Post

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    Does this tell us anything more than that people who are positive on a tilt test are positive on a tilt test? There do not seem to be any...
    Post by: Jonathan Edwards, Dec 25, 2021 in forum: ME/CFS research
  13. Jonathan Edwards
    Post

    Open Effectiveness of Acceptance Commitment Therapy or Micro Breaks in Patients With Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis

    I seem to have the Omicron this week. Based on what I have heard and what it is like to have omicron, if it were me with ME I couldn't even cope...
    Post by: Jonathan Edwards, Dec 24, 2021 in forum: Recruitment into current ME/CFS research studies
  14. Jonathan Edwards
    Post

    Post-Covid-19 Syndrome: Improvements in Health-Related [QoL] Following Psychology-Led Interdisciplinary Virtual Rehabilitation, 2021, Harenwall et al

    So 76 on average reported a bit better. 73 decided not to report - probably no better or worse or didn't think the rehab as any use. Pretty bad,...
    Post by: Jonathan Edwards, Dec 24, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Jonathan Edwards
    Post

    Chronic Fatigue Syndrome and Occupational Status: A Retrospective Longitudinal Study, 2021, Chalder et al

    That's the trouble with writing to robots!
    Post by: Jonathan Edwards, Dec 23, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Jonathan Edwards
    Post

    UK: NICE Longcovid guideline 2020

    It is just the usual mindless blather. Unfortunately, e seems have got into politically correct quagmire. All decisions have to involve...
    Post by: Jonathan Edwards, Dec 23, 2021 in forum: 2020 UK NICE Long Covid Guideline
  17. Jonathan Edwards
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    So what would make them so unusual in this respect? Presumably, to persist, they would have to not release any activating components or get stuck...
    Post by: Jonathan Edwards, Dec 23, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  18. Jonathan Edwards
    Post

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    I am afraid it all sounds very much like a BPS theory: It's this, but not quite, it is more this, but not quite it's this, but not quite it's ......
    Post by: Jonathan Edwards, Dec 22, 2021 in forum: Blood (e.g. coagulation, cell stiffness)
  19. Jonathan Edwards
    Post

    Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

    Interesting that this should be put out by Yahoo!Finance. What has it got to do with finance I wonder?
    Post by: Jonathan Edwards, Dec 22, 2021 in forum: USA clinics and doctors
  20. Jonathan Edwards
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There is an endless supply of health professionals with these brainless, self-righteous ideas. It may even be a functional disorder.
    Post by: Jonathan Edwards, Dec 20, 2021 in forum: 2020 UK NICE ME/CFS Guideline
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