On a related subject: Prescribing Mindfulness Allows Doctors to Ignore Legitimate Female Pain This trend offloads the responsibility of care...
:mad::mad::mad::mad:
Reading the title again 'Don't reject evidence from CFS therapies', it appears like the plea of people in a dire situation.
PACE cited in the introduction, as an example of dubious trial:
He's THE specialist of "Functional Neurological Disorder". He created this site for patients: http://www.neurosymptoms.org/ He says that about...
They now resort to citing small studies to back the PACE trial, which doesn't seem to be able to stand alone by itself.
(Very poor) Response: Don't reject evidence from CFS therapies Michael Sharpe, Trudie Chalder & Jon Stone...
Great letter addressed to Archives of Disease in Childhood, signed by 21 signatories! (amongst them @Jonathan Edwards and @Carolyn Wilshire Thanks!)
http://sci-hub.tw/http://www.tandfonline.com/doi/abs/10.1080/21641846.2017.1280114?journalCode=rftg20
With the problem of objective outcomes showing no improvment, I would also talk about the long term follow up PACE study that shows a null result....
"For most of us", what a belittlement of what we are going through. This really portrais us as sissies that can't cope with common benign...
Great work! Thanks to @Graham @Carolyn Wilshire and everyone involved. I am really pleased to see that S4ME is starting to be a real platform for...
Dr Neigel Speight commented under @Spoonseeker 's blog:
Although talking of Nassar's victims, a lot is relevant to our situation, IMO. Since sociologist William Ryan wrote the book "Blaming the Victim"...
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Without patients' scientific skills the criticism of the BPS view would have been impossible.
That's pretty ironic to defend academics in a disease where academics have failed us constantly. Of course, there are patients who think of...
Are you aware that the release of the PACE data which led to the reanalysis of the trial was achieved thanks to Allem Matthees, a patient? If we...
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