In speaking to a number of managers in care homes, one of the first tests they run is a vitamin test ( primarily for B12 and vitD)- they have seen...
If only @Grigor could see the day 3 highlight - then we may have an objective measure
Oops - yes can thanks. Will post link to parent' s forums- many of whom have issues gettong POTS considered Thanks ( no coffee yet)
Coming up as not available.
My daughter is having this test next week - I'll let you have feedback re how she found it afterwards.
Could we ask what his diagnosis process is - as it is a process of exclusion what testing is done and which tests would be "core" given post...
Given paediatric issues , could we ask about diagnosis process , PEM and PRS - it would be useful to have perspective from an expert
Do the rest of the speakers adhere to same world view?
There is much to continue to be concerned about as @Countrygirl may be able to confirm, EC has drawn up diagnostic criteria for PRS or PAWS (...
If energy provision ( ATP provision via Mitochondria) is compromised then would this not account for some of the issues
Yes, may try this however PPIs are no good long term.she was on omeprazole, clarithromycin and metrodiazole (?) I think she may have felt better...
My daughter felt better whilst on H Pylori protocol of drugs - perhaps similar effect. GP and paediatrician both at loss.
Funnily enough, those i know with ME are the most emotionally resilient people i know.
I looked into referred pain ( picture was on british arthritis website) and the area on back where pain was sorest for my daughter corresponded to...
My daughter ticks all the boxes. Recently she has described her joints as being " cold on the inside" and having " too much air inbetween". She is...
My daughter has a feeling that " the air disn' t get all the way down". This is worse with PEM. She had spirometry test at GP surgery which was...
For as long as they can get away with it
Given the insights into her childhood she shared on her TEDx talk, i think there is a whole other level informing her actions.
Wow! Shame our own media are not up to the task
http://mentalhealthdaily.com/2015/05/13/delusions-of-persecution-causes-symptoms-treatment/
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