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  1. Amw66
    Thread

    Wheelchair awareness day

    Brilliant initiative by Skye councillors - could your council do this too? Best way to gain understanding...
    Thread by: Amw66, Aug 27, 2018, 0 replies, in forum: Other health news and research
  2. Amw66
    Post

    Watt from MRC defends PACE in letter to Times

    This is the route we are going and why there is such cognitive dissonance. Fatigue in MS reframed per PACE paradigm [MEDIA]
    Post by: Amw66, Aug 27, 2018 in forum: General ME/CFS news
  3. Amw66
    Post

    Watt from MRC defends PACE in letter to Times

    @dave30th would any of your letter's signatories be prepared to resign this? Or could you round up a new letter would any MPs be prepared to sign...
    Post by: Amw66, Aug 27, 2018 in forum: General ME/CFS news
  4. Amw66
    Post

    #MEAction: Enrolling: Stanford School of Medicine Brain Tissue Bank

    I wonder if UK biobank could extend its remit to facitating this?
    Post by: Amw66, Aug 25, 2018 in forum: ME/CFS research
  5. Amw66
    Post

    Simon Wessely: ‘ECT is in my own advance directive’

    It i am woefully uninformed re ECT, other than the effects it had in this instance. It was not effective for this woman. Would two teenage boys...
    Post by: Amw66, Aug 24, 2018 in forum: Other health news and research
  6. Amw66
    Post

    Simon Wessely: ‘ECT is in my own advance directive’

    I only know of 1 person who had ECT. They were an ex employee of my aunt who fell into a deep depression after her second marriage ended ( her...
    Post by: Amw66, Aug 24, 2018 in forum: Other health news and research
  7. Amw66
    Post

    Metabolic features and regulation of the healing cycle—A new model for chronic disease pathogenesis and treatment, Robert K Naviaux, 2018

    Here it is reserved for thise whose test results indicate issues - to check extent of damage. You do mot have a hope in hell of one on the NHS if...
    Post by: Amw66, Aug 24, 2018 in forum: Other health news and research
  8. Amw66
    Post

    Hydrocortisone

    You are welcome. I hope that you can find and access something that helps .
    Post by: Amw66, Aug 23, 2018 in forum: Orthostatic intolerance treatments
  9. Amw66
    Post

    A new approach to find biomarkers in (CFS/ME) by single-cell Raman micro-spectroscopy, 2018, Morten et al

    The BH4 angle might tie this into Rich von K ' s theory re folate availability. If folate availability is poor , homocysteine can form methionine...
    Post by: Amw66, Aug 23, 2018 in forum: ME/CFS research news
  10. Amw66
    Post

    Hydrocortisone

    De Vega has done a number of papers on glucocorticoid function - they are all listed on ME-Pedia, with text access : the epigenetic paper of 2017...
    Post by: Amw66, Aug 22, 2018 in forum: Orthostatic intolerance treatments
  11. Amw66
    Post

    Hydrocortisone

    Sadly people can get " parked" on them
    Post by: Amw66, Aug 22, 2018 in forum: Orthostatic intolerance treatments
  12. Amw66
    Post

    Hydrocortisone

    The adrenal issue is key. From posts here and the other place adrenals seem a poor cousin to thyroid issues, yet failure to address adrenal issues...
    Post by: Amw66, Aug 21, 2018 in forum: Orthostatic intolerance treatments
  13. Amw66
    Post

    Hydrocortisone

    Didn' t work for my daughter. Set her back 6 months , but she dosn' t have POTS. There are glucociglucocoid sensitivity issues for some. Check...
    Post by: Amw66, Aug 21, 2018 in forum: Orthostatic intolerance treatments
  14. Amw66
    Post

    Investigating the origins of GET (graded exercise therapy)

    Plus ca change ...
    Post by: Amw66, Aug 21, 2018 in forum: Historical Documents
  15. Amw66
    Post

    David Tuller: Trial By Error: FITNET-NHS Recruitment Ad Promotes ''Recovery''

    Perhaps the use of a third party for recruitment may highlight issues with recruitment...
    Post by: Amw66, Aug 21, 2018 in forum: General ME/CFS news
  16. Amw66
    Post

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    One for Carol Monaghan's Science and Technology committee. Who funds these kind of studies? Again peer review and journal assessment seems...
    Post by: Amw66, Aug 19, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Amw66
    Post

    Pharmacogenetics

    Hopefully your doctor will be interested too ..
    Post by: Amw66, Aug 19, 2018 in forum: Other health news and research
  18. Amw66
    Post

    Hyperintense sensorimotor T1 spin echo MRI is associated with brainstem abnormality in CFS, 2018, Barnden et al

    when clicked to twitter message is that page does not exist
    Post by: Amw66, Aug 19, 2018 in forum: ME/CFS research
  19. Amw66
    Post

    OMF update - Research on red blood cell deformability.

    I tried to argue for a fibroscan - ( we are now under an endocrinologist as key consultant) ; weird issues with herpes viruses, onset following...
    Post by: Amw66, Aug 18, 2018 in forum: ME/CFS research news
  20. Amw66
    Post

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    Crap in=crap out
    Post by: Amw66, Aug 18, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
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